Re: [QUAD-L] UTIs back to back

[B. Kimberlin \(Quadius\)]

Lori,

Have you been getting these infections since you relocated? I had quite a bit of problems last year, but luckily I was able to avoid a full-blown UTI. I did think I had one about a month and a half ago and the doctor did give me an antibiotic due to the fact I was symptomatic in almost every area, however, my white blood cells were not elevated. This particular antibiotic, Cipro, was able to rectify my excessive sediment and smell difficulties and I have not had to change my catheter nearly as often as I was previously (almost once a week). I have had problems periodically since then, but it seems to be attributed to what I am drinking. I am wondering if the water you are drinking could be causing some of your problems? It doesn't sound like your procedures are at fault.

Billy

Lori Michaelson <[EMAIL PROTECTED]> wrote:

Is anyone (or HAS anyone) gone through a period of years with back-to back UTIs?  I've had an indwelling foley for my 25 quad yrs.   I've held off on asking because it's all too individual.  Anyway, the last 5 yrs I've had back-to-back UTIs.  After 20 years of only 'a few.'      Three yrs ago I went to a Urologist and I had a KUB done.  3 tiny stones were found and he wanted to put me under and all to remove them.  I asked him point blank - "Will this help my problem?"  He said "no."  I declined the procedure and the stones came out themselves anyway!   I had a bad experience with a cystoscopy in 1991 so I've never had one again.  I was ok DURING the whole procedure but suffered from SEVERE bouts of AD A FULL WEEK after!  I wasn't having UTIs back then... it was a routine procedure to see what was in my bladder.   Things have gotten worse since December.  I got a nasty pathogen (proteus mirabilis) and mu ex-Dr treated it wrongly for 5 months!  When I got a new Dr he thought for sure that the latest generation of correct antibiodic for THAT bug would work.  It did not.   The next step was at-home IV antibiodics for ten days.  My urine culture after that was completed was finally clear!  I was so excited!  Then a week later - BAM!  My usual fever & dark cloudy urine symptoms returned.  I'm now on oral Augmentin for it and as long as I'm on antibiodics the symptoms disappear and I feel fine.   But I can't, of course, be on ongoing antibiodics for resistance buildup reasons.   I finally got a referral to go to a Urologist who supposedly is familiar with SCIs since we have our own host of issues.   I've had really bad luck with ALL Drs over the years despite doing my homework prior, etc.   I haven't ever had blood in my urine or anything else flaky show up in my cultures and urinalysis'.    Has anyone else had these back-to-back UTIs?   Lori Michaelson C4/5 complete quad, 25 years post Tucson, AZ

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