RE: [QUAD-L] Pain and AD

[Lana Baugh]

Luke,   Thanks for the info. I’ll talk to the doc about it. It’s one thing we haven’t checked.   Thanks, Lana, Gabe’s mom   From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, August 18, 2005 9:45 AM To: [EMAIL PROTECTED] Subject: Re: [QUAD-L] Pain and AD   Lana     let me just tell you this is my experience and Gabe may be different.  Gabes injury is definitely different from mine, but i'll tell you how i've overcome and coped.      now that i'm off the pump, for 2yrs, i still have spasms (i take baclofen & zanaflex).  i try to drink all the water i can, along with water i drink juice, ensure w/ fiber (i do not drink soda, it contains caffeine which can take calcium out of your body).  eating is also a big part in pain In my experience.  i notice that when i don't eat enough my hips and tailbone would hurt bad, i couldn't sit in my chair for more than 30 min.  i have a slender build so i try to eat all meals, a snack, and 2 ensures (i still don't gain much).  i also found out that i have osteoporosis, which i believe was adding to my pain.  my doctor started me on a drug to help slow and possible reverse osteoporosis  before i started this med i had horrible back pain that forced me to stay in bed, which isn't good to do.  it did not eliminate all my pain, i had to exercise and stretch (stretching was really painful).  i use to go to the emergency room all the time thinking my bones were breaking but they never found any.  when i do experience pain, i notice it's because i'm not sticking to my routine.  i am only telling you what has worked for me.  i would ask your doctor about osteoporosis, mine went undiagnosed for awhile.    hope this helps luke   WebMD with AOL Health - Drink Too Many Colas, and Your Bones May Pay the Price   In a message dated 8/18/2005 3:15:47 AM Central Standard Time, [EMAIL PROTECTED] writes: Luke, Gabe is 32 years old and 10 years post and he has a C-4-5-6-incomplete injury. It was caused by pressure from a seizure producing a spinal cord stroke following a laminectomy.  His electric chair tilts and that helps. We fought with the insurance co. and he will get a new manual called tilt in space soon. He gets very worn out when he uses the e-chair so that limits his activities. He uses a ROHO-quatro cushion.   The first thing we checked on was a pressure sore and UTI. While his baclofen pump has been a pain in the ass sometimes it has reduced pain significantly. He is on his third pump.   Hope I answered the questions. I’m desperate here. Any help you can give.   Lana Gabe’s mom