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I feel like a whole new person after moving to southern AZ after living my whole life in the northeast prior to the move. When being warm or cold runs your life -- it's no small matter! ESPECIALLY if it intensifies pain!
Like many ... it takes me HOURS to get warm if I get cold. And the tense, aching muscles during that "cold" period exacerbates everything.
Again, today, the sun on our back patio is SO WARM. Might be 70 degrees here in Tucson today anyway. It feels like 75+ IN THE SUN out back here. The only things that really warm me to the bone marrow is direct warm sunlight or a roaring fire in a fireplace. Clothes and blankets take hours.
Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ
-------Original Message-------
Date: 01/22/06 07:43:54
Subject: Re: [QUAD-L] Types of pain_Warmth
Lordy lordy John,
I thought you were telling how my pain and discomfronts are affected by heat and cold. We all must suffer pain from cold, I don't have to do anything different to wake up cold. I try to keep the temperature the same but I still wake up cold several times a week. The pain is so much greater when im cold, somtimes its up in the evening before I get warm. I also take hydrocdone and xanx to dull the pain. Dam this being a quad sucks! I hate to keep raising my pain meds, but dam this pain. It feels like my arms are laying in ice and my butt has been sitting on a rock for several hrs. Legs just that dull stinging ake, maybe I need to try some mary jane. Lol.
Silas
----- Original Message -----
Sent: Saturday, January 21, 2006 6:46 PM
Subject: Re: [QUAD-L] Types of pain_Warmth
I use to think it was just me that felt that awful cold. It makes me hurt to my very soul. I use a small heater by my bed but once I'm cold, it takes hours to get warm. The worst part is, cold hurts! I love to feel warm sunlight but that's rare in Ohio. I take valium as needed, and hydrocodone for pain, but I cant say it is all that great since I have to O.D. to get the effect of pain relief when it is bad. I've tracked it and found that when the pain is worst is when my blood pressure is very high. I'm not sure what to do about it since my BP will drop to very low and nobody seems to understand it to any helpful degree. I'm fairly certain that both problems stem from the hypothalmus and pituitary glands not functioning. I also suffered brain damage so maybe it is just me. I'd sure like to know what y'all have found to work on pain. Sleep doesn't count. And I do smoke a little marijuana to help fall asleep.
john
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