In <[EMAIL PROTECTED]>, on 04/25/06
at 10:27 PM, "Corie Jones" <[EMAIL PROTECTED]> said:
>I completely understand how you feel Rob (and others on the list who are
>suffering with pain), I have been suffering with neuropathic pain (also
>called central pain) for over 12 years. Mine started several months after
>my injury and has only increased over the years. I also have a syrinx
>and had the shunt procedure done five years ago in hopes of relieving my
>pain, but it did nothing for my pain and my pain has continued to get
>worse. Either that or I'm just not coping with it as well.
>My pain level is always between a 7-10. I have the hot and cold burning,
>with the pins and needles from my chest down to my feet 24/7. I've tried
I have no syrinx. I can't even concentrate on things due to my central
pain. It has me basivally homebound, because I can't tolerate riding in
the van any more (starts, stops, and bumps and dips in the road aggravate
the back and abdominal pain, and quickly make me nauseous.) Among other
sensations, it feels like all my skin is scraped off and doused with
alcohol, my shoulder blades and vertebrae stick out through my skin, and
my fingers and legs are stuck together. My shoulder blades catch on my
ribs and pop when I move the attached arm, so I can't exercise. My skin
feels like it's ripping when I move or breathe.
Pain is definitely worse than my C-5 quadhood. For almost 25 years now.
Alan
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