|
Wow, a lot of us seem to be in the same boat! And that is an understatement!
When we lived in New York and Virginia everything seemed to be worse than it is now. I remember staying at home most of the time because going out in the van was like going through Hell for much of the same reasons that you mention, Alan.
For some reason, the warmth of the South has really made me feel so much better than how I felt for two good years up north [actually more than that but there were some brief respites here and there]
I DID have to quit work however because of the low endurance and low pain tolerance to keep up a 9 to 10 hour-A-day job. They said that I could work from home but that was not really realistic with the job that I had.
I wish there was some saying that helped also all. Wishful thinking.
Lori C4/5 Complete , 26 YRS POST
Tucson, AZ
AGE - 41
I have no syrinx. I can't even concentrate on things due to my central
pain. It has me basivally homebound, because I can't tolerate riding in
the van any more (starts, stops, and bumps and dips in the road aggravate
the back and abdominal pain, and quickly make me nauseous.) Among other
sensations, it feels like all my skin is scraped off and doused with
alcohol, my shoulder blades and vertebrae stick out through my skin, and
my fingers and legs are stuck together. My shoulder blades catch on my
ribs and pop when I move the attached arm, so I can't exercise. My skin
feels like it's ripping when I move or breathe.
Pain is definitely worse than my C-5 quadhood. For almost 25 years now.
Alan
| 
