Hi Dillon,
This is a question that most people will face as they grow older. Of course each ones individuals circumstances will play an important role in the answer to the question.
As for me post SCI, my wife has lived with me, my sons have lived with me, I've lived alone, and now my Mom lives with me. I plan on living here for as long as possible, and then both of my sons own their homes and they both have invited me to live with them. I enjoyed living along, but that was only after I planned out exactly what I would need to stay alone and get the help that it would take to live alone. Remember, being alone is different than being lonely.
I did loose some people that I considered "good friends" after my SCI, but I have met new people that I now know are truly "good friends" to me.
It is
good that you are addressing the question of your future now. Too many people just live their lives expecting everything will fall into place. Wrong! It takes planning to be able to live out your life in relativity comfort.
What State do you live in? Have you looked into the Home and Community Based Waiver in your State? The Waiver makes it possible for a person to get the care they need while still living at home.
Also, you should contact your States Independent Living Center. They are typically non-residential, private, non-profit, consumer-controlled, community-based organizations providing services and advocacy by and for persons with all types of disabilities. Their goal is to assist individuals with disabilities to achieve their maximum potential within their families and communities.
Whatever is in
your future, I wish you all the best, and pray that you will find the answers to your questions.
With Love,
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
Dillon Ewa <[EMAIL PROTECTED]> wrote:
Hello again,
I want to ask all of you about yours and my future. I realize all our injuries are different and the impact of our injuries on our lives can not be fairly compared but for the most part coping with our injuries is something we all must address.
How many of you fear living or being alone? I live with my father in a home he owns and feel lucky that I've been able to receive my personal care without too much difficulty. My father helps with other items such as some meals and other routine tasks. But since my injury, I have been unable to generate hardly any solid or long-lasting friendships. I know my health and recurrent bouts with pressure sores have kept me from being as active in the community as much as I would like, as well as finding employment. I have family in the area but I know in my heart I can count on them to be only available as a backstop or filling in for me in times of crisis. I have not become negative and am open to the possibility of seeking out friendships and relationships in my neighborhood and the community but I must admit that I am quite discouraged sometimes of what I will do when my father is no longer available to help me with my personal care in my home as well as for emotional support.I would appreciate any comments all of you could provide
Dillon
Eric Olson <[EMAIL PROTECTED]> wrote:I've never used them. I never thought it was a good idea because all the secretions that stick to the outside of the catheter even if they are somewhat sealed in something. You should subscribe to the vent-users list. Not many here on vents. To subscribe send e-mail to [EMAIL PROTECTED] with the word subscribe as the subject.
Eric
[EMAIL PROTECTED] wrote:
Does anyone use inline suction catheters in your vent circuit? How often do you change it?
SandyALS '95
