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I am so glad to hear from you Stacy! Even if you had to go through this medium ... you at least got to us to let us know that you made it through surgery! At least you know that you have that in your past now! YIPPPEEEEEEE!
It is up my opinion [which agrees with you] that you would be better off recovering at home. Is there no family to step up and lay it on the line to check you out of the hospital and help you at home? This was one of our biggest concerns when I just had my surgery for the bladder stones. Most often, medical facilities will like to keep you for the money [depending on the insurance companies however].
Just remember you know your body best as well as your home caregivers.
Back in 1995 when I had my shunt surgery ... when I was finally in the clear after two full weeks of hell ... they were just letting me lie there day after day and doing nothing but giving me some heart palpitation medication. After three days of just lying there ... I checked myself out of the hospital and recovered at home.
To answer your question about the magic bullet suppositories and your recent experience ... I can say that you and I both sound like we are on the same routine. I also do my routine every third day using the magic bullets. And, yes, I have had that experience before several times no matter how much we try to avoid it. I can only guess that the reason it happened to you at this time is because of the extra pain medicine. I know that it is my pain medicine that makes my bowel routine sluggish.
Sometimes, even if I eat the same amount, I will skip going completely on the third day routine. Ironically, that happened to me last night. And I have been encouraging going by eating shredded wheat which has helped. But I did not go last night or any time afterward. But it is not like it is not happened before so I can expect to go a large [very large - LOL] on Monday evening.
Remember that doctors are not gods and they still put their pants on one leg at a time as we all do. As well as all the other management staff at the hospital. And of course a hospital is the breeding ground for bacteria so, for us quads, we want to spend as little time there as we possibly can.
I am on my way to bed that I wanted to respond ASAP because I am so glad to hear from you so soon!
Lori C4/5 Complete, 26 yrs post
Tucson, AZ
AGE - 41
-------Original Message-------
Date: 06/03/06 13:41:37
Subject: [QUAD-L] Unidentified subject!
Hey everyone,
I just found out from one of the nurses that I could sign on as a guest through their internet connection since that is all my lap top is picking up. I found that pretty exciting.
My surgery was Wed. morning and I just saw the doctor this morning. He said he would send me out of here probably on Monday but I really am considering a rehab hospital. First I will tell you that it does hurt but the pain is finally treatable through the pain pump. I think its something like dylantin. I'm not sure how its spelled but my skin breaks out in reaction to morphine (burning, turns red.) I saw the flap. It's big but does look good. There is a little dark area close to a couple of the staples but the doctor isn't worried about it. It hasnt gotten any worse. I just can't believe how bit the incision is for this. Its from close to my anus to close to my knee on the back. He didn't take any skin from anywhere else either which is a plus for me.
The care could be better. I wonder somedays if I would be better off at home because I feel like I'm not getting it here. Last night my catheter leaked so my bed was wet. The cna came in to change it Then it leaked again, just then I knew that it was clogged and it was about time to change it anyhow so I told them I needed a new one. They didn't have the size I needed on this floor and waited for transport to bring it up. He came up an hour later but never got the message about the catheter. I just kept leaking, sitting in a mess. I finally got it a couple of hours after that and I still needed to do my bowel program. I brought the magic bullets with me but things didn't run smoothly. I usually go every 3 days considering since I went on Tues., I tried last night. I waited a longtime and nothing. The only thing that did come out was the suppository. I normally go sitting up and change fo diet/meds. I ended up going a couple of hours later but didn't empty. Has this happened to anyone else after doing your bowel program sitting up for so long?
So the patient care whatever's started pushing me out of the door before I could even act like myself. Asking if I were going home or not. The doctor said they asked him 5 times and he said no that he is keeping me. Anyhow I am pretty sure that I will go to a rehab facility but it's a matter of who has a bed. I might have to turn one down. This hospital is rated one of the top 100 but I don't see how with the nursing. Some are nice but the majority aren't really helpling that much. I rarely see them to tell you the truth. I then have a few great ones who do everything that they can. Iknow in rehab facilities and nursing homes, the nurses are more underpaid here so there is a shortalge so they are pretty thinned out. I have the weekend to think about it. The mattress was ordered by the case/social worker and can always be cancelled.
All in all, so far health wise I am doing great. Way better than I expected.
Stacy
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