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I don't post often. But AD is by far the worst pain I've ever had, so
hope this can help someone. For me all initial AD were caused by
not being able to empty my bladder. But once I get a bad case of AD, it seem for
the next few weeks many things can trigger AD. Like a semi-full bladder, or
during my bowel program and one very annoying one is just transferring to bed
and lifting knees/legs to get my pants off, if not done very slowly and
gently would trigger AD. We did an in hospital test with the medication
"adalate" not sure of spelling. Not a very fun experiment, as I was going into
hospital (outpatient for the evening) to trigger AD. This medication can be
very dangerous as it lowers the blood pressure very fast. It doesn't solve
the cause just reduces the symptoms. In my case the cause at this point is more
my body's sensitivity to AD. It was painful but it worked. Now I always have
some with me.
For me after a bad case of AD, the actual headache can last hours and I
feel like shit for a day or two. Not to mentioned being prone to AD for the next
few weeks. If it's a milder one then it may only last for a few days.
One other thing I find very annoying about AD is that beside AD mode, my
blood pressure is low to the point were it can be very uncomfortable. Oh well,
just my two cents.
Charlie
----- Original Message -----
Sent: Wednesday, June 21, 2006 5:43
PM
Subject: Re: [QUAD-L] Hey Friends/
problem
That sounds like AD type thing your having Dylan. It can kill you. You
need to isolate it and get some blood pressure meds so you u don't stroke
while figuring it out. Just curious, did you have a traumatic brain injury
when you broke your neck? My tbi will cause a seizure similar to AD but it
won't respnd to me sitting up. Make sure they are aware that elevating your
upper body helps. the stroke is usually a few minutes ahead of the heart
attack. You shouldn't panic but you need to check, your bowels, then bladder,
and finally check for a source of pain. It sounds like you have a pain source.
I'm told those darn sores are extremely painfull. You should also ask to have
a blood presure med that you can keep with you, that will bring down
your BP very fast. There was some stuff made back in the 50's for high BP,
but its hard to find. It brings ur BP down fast. (so fast that normal
people had problems using it, but us paralyzed people can use it dead on for
AD) I'm on other heart meds now so I haven't had any in years. I'm sorry I
don't remember the name of it. Rick is right on about keeping your stool soft.
An impaction can mess you up, too.
Congrats on the 14 yld. You have much to live for.
Peace and good
luck.
john 30years post, C-5
In a message dated 6/21/2006 3:14:07 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
--- Dylan <[EMAIL PROTECTED]> wrote:
> Hi, I
haven't written in in years but I still
> receive and read the
> quad-list. I have a warm spot in my heart for all of
> you
people. And I have
> found reading it to be both encouraging and
helpful,
> at times wen I really
> need information about this
disability. I fell like
> a veteran of this quad
> thing now
:-) I was injured 8/10/86, a month after
> my sixteenth
birthday.
> So I've now been in this wheelchair thingy for 20
>
years! wow.
>
> What keeps my going and positive are my
daughter,
> who is now going on 14
> years old and doing very
well (and yes she was
> conceived naturally by a
> c5/6
complete quad, so it is possible), and my
> friends both old and new.
> Recently, well in the past year, I've gotten into
> playing
this online
> computer game called World of Warcraft. I'm
having
> great fun with it. I get
> to pretend I can walk, run,
and jump again :)
>
> Anyway, one reason I'm writing in is
because lately,
> like in the last month
> or two, I've started
to have these super
> uncomfortable type of
>
disreflexia/spasm. I assume that others of you must
> have experienced
it as
> well. Its a different type than the normal
>
disreflexia or spasm that might
> happen if, say, you are having a
pressure spot or
> are cold or whatever. It
> seems to trigger
in the morning after or during my
> stretching routine or
>
just after I get in bed(they're usually weaker
> then). And the only
thing I
> can do to stop them is to immediately sit up. If I
>
don't, they (the spasm
> with its accompanying very painful
disreflexia) will
> come through my body
> in a rhythmic
pattern (like hiccups) but with each
> one getting
>
stronger/worse until within a few minutes my heart
> is pounding in my
chest,
> my whole body is clenched, and I get the worst
>
headache imaginable. I can
> feel the blood pumping into my brain and
it gets to
> where it feels like my
> brain could explode if I
don't sit up. After I sit
> up it calms down pretty
> quickly,
and if I've let the headache escalate by
> taking awhile to sit up,
> it takes about 45min for it to dissipate and go
> away. It
also seems to
> trigger when the right side of my torso/stomach
area
> is touched. Other than
> these occurrences my health is
doing very well and
> I'm in the final stage
> of clearing up
this really bad pressure sore that I
> had.
> I'm wondering if
any of you quads know what I'
> talking about or have
>
experienced this. If so, do you know what might
> cause this? and is
here a
> way to address the cause of it?
> Thank you. Yours,
Dylan
>
>
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