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On the bottle it's Apo-Nifed Nifedipine, but my
doctor refers to it as adalate which I don't know the correct
spelling.
----- Original Message -----
Sent: Thursday, June 22, 2006 8:33
PM
Subject: Re: [QUAD-L] Hey Friends/
problem
What is the Medication you carry for AD
called???
Charles Belliveau <[EMAIL PROTECTED]> wrote:
I don't post often. But AD is by far the worst pain I've ever had, so
hope this can help someone. For me all initial AD were
caused by not being able to empty my bladder. But once I get a bad case of
AD, it seem for the next few weeks many things can trigger AD. Like a
semi-full bladder, or during my bowel program and one very annoying one is
just transferring to bed and lifting knees/legs to get my pants off, if
not done very slowly and gently would trigger AD. We did an in hospital test
with the medication "adalate" not sure of spelling. Not a very fun
experiment, as I was going into hospital (outpatient for the evening) to
trigger AD. This medication can be very dangerous as it lowers the
blood pressure very fast. It doesn't solve the cause just reduces the
symptoms. In my case the cause at this point is more my body's sensitivity
to AD. It was painful but it worked. Now I always have some with me.
For me after a bad case of AD, the actual headache can last hours and I
feel like shit for a day or two. Not to mentioned being prone to AD for the
next few weeks. If it's a milder one then it may only last for a few
days.
One other thing I find very annoying about AD is that beside AD mode,
my blood pressure is low to the point were it can be very uncomfortable. Oh
well, just my two cents.
Charlie
----- Original Message -----
Sent: Wednesday, June 21, 2006 5:43
PM
Subject: Re: [QUAD-L] Hey Friends/
problem
That sounds like AD type thing your having Dylan. It can kill you.
You need to isolate it and get some blood pressure meds so you u don't
stroke while figuring it out. Just curious, did you have a traumatic brain
injury when you broke your neck? My tbi will cause a seizure similar to AD
but it won't respnd to me sitting up. Make sure they are aware that
elevating your upper body helps. the stroke is usually a few minutes ahead
of the heart attack. You shouldn't panic but you need to check, your
bowels, then bladder, and finally check for a source of pain. It sounds
like you have a pain source. I'm told those darn sores are extremely
painfull. You should also ask to have a blood presure med that you
can keep with you, that will bring down your BP very fast. There
was some stuff made back in the 50's for high BP, but its hard to
find. It brings ur BP down fast. (so fast that normal people had problems
using it, but us paralyzed people can use it dead on for AD) I'm on other
heart meds now so I haven't had any in years. I'm sorry I don't remember
the name of it. Rick is right on about keeping your stool soft. An
impaction can mess you up, too.
Congrats on the 14 yld. You have much to live for.
Peace and good
luck.
john 30years post, C-5
In a message dated 6/21/2006 3:14:07 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
--- Dylan <[EMAIL PROTECTED]> wrote:
> Hi, I
haven't written in in years but I still
> receive and read the
> quad-list. I have a warm spot in my heart for all of
>
you people. And I have
> found reading it to be both encouraging
and helpful,
> at times wen I really
> need information
about this disability. I fell like
> a veteran of this quad
> thing now :-) I was injured 8/10/86, a month
after
> my sixteenth birthday.
> So I've now been in this
wheelchair thingy for 20
> years! wow.
>
> What keeps
my going and positive are my daughter,
> who is now going on 14
> years old and doing very well (and yes she was
>
conceived naturally by a
> c5/6 complete quad, so it is
possible), and my
> friends both old and new.
> Recently,
well in the past year, I've gotten into
> playing this online
> computer game called World of Warcraft. I'm having
>
great fun with it. I get
> to pretend I can walk, run, and jump
again :)
>
> Anyway, one reason I'm writing in is because
lately,
> like in the last month
> or two, I've started to
have these super
> uncomfortable type of
>
disreflexia/spasm. I assume that others of you must
> have
experienced it as
> well. Its a different type than the
normal
> disreflexia or spasm that might
> happen if, say,
you are having a pressure spot or
> are cold or whatever. It
> seems to trigger in the morning after or during my
>
stretching routine or
> just after I get in bed(they're usually
weaker
> then). And the only thing I
> can do to stop them
is to immediately sit up. If I
> don't, they (the spasm
>
with its accompanying very painful disreflexia) will
> come
through my body
> in a rhythmic pattern (like hiccups) but with
each
> one getting
> stronger/worse until within a few
minutes my heart
> is pounding in my chest,
> my whole body
is clenched, and I get the worst
> headache imaginable. I can
> feel the blood pumping into my brain and it gets to
>
where it feels like my
> brain could explode if I don't sit up.
After I sit
> up it calms down pretty
> quickly, and if
I've let the headache escalate by
> taking awhile to sit up,
> it takes about 45min for it to dissipate and go
> away.
It also seems to
> trigger when the right side of my
torso/stomach area
> is touched. Other than
> these
occurrences my health is doing very well and
> I'm in the final
stage
> of clearing up this really bad pressure sore that
I
> had.
> I'm wondering if any of you quads know what
I'
> talking about or have
> experienced this. If so, do
you know what might
> cause this? and is here a
> way to
address the cause of it?
> Thank you. Yours, Dylan
>
>
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