Re: [QUAD-L] LYRICA

[Danny Hearn]

  Kathy and others.........has your pain increased as time has gone by ?  I just passed 9 years as a quad, I thought In time things would get better but it seems to be the opposite. The 1st 3 or 4 years I could sleep like a baby most of the night but now I suffer most the nights in pain getting very little good sleep rest-- I feel exhausted all the time. I take amitriptyline ( elavil ) at nights to sleep and it helps some. At night it seems my blood does not circulate good, I think I may try one of those air pressure relief electric mattresses that shift your weight when I can afford it, I know a few of the quads say they really help.  Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ???             Dan

[EMAIL PROTECTED] wrote:

Hi Ron,

I had been taking neurotin   for 7 years and  it had increased to 1200 mg 3x a day.   My neuropathy really covers me all over and I can take different muscle relaxers , pain pills,  and botox shots

and still have pain.

My doctors had told me about lyrica and it is the "new" miracle medicine that is suppose to work wonders.  I have been on it for 6 weeks and they have raised it once.  I am taking 300 mg 2x  a day and they say it can be increased a lot more.  My baclofen has also been increased to 20 mg 3x a day.  Right now I am super sensitive to touch.  Bathing is horrible, I can't  stand the feel of the bath cloth and towel going up and down my skin.  I am crying by the time I am dressed.  Then I have to take the pain pills.

The pain clinic is a new doctor to me and he says if I will hang in there he believes that lyrica will solve my pain when we find the right dose.  I wish they could increase  it faster.

Kathy in Mississippi