Linda, What Happen? How long were you left along. I just got out of the 
hospital with nomoma. But getting better everyday. Wheelchair Warrior
 
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Hi Lori,
Believe me, I thought that I was going to have a panic attack. I took little 
sips of my water, just enough to wet my dry mouth & I didn't want to drink too 
much, fear of filling my UDBag. Thankgoodness I have a 4000cc bag. Yes I was 
afraid my bag was going to burst or I would have autonomic dysreflexia, luckily 
I didn't. I am on M-W-F bowel program, so that wasn't a worry. Then 5pm Sunday 
a CNA showed up & brother was I pissed off!!! On Monday the Nursing Agency was 
apologizing.
Lindaf

 Dear Linda,
 
If I were left for that long alone I would be dead.  In fact, I would not make 
the first 24 hours because my urinary bags would be overfull leading to 
autonomic dysreflexia leading to death in a short period of time.
 
 Who helped you with urinating and/or bowel routines in that timeframe?  Who 
helped you get drinks and food?
 
Lori
PS-- please forward this to the list if you would like so that they will know 
your answers if they have the same questions.
  
-------Original Message-------
 
From: LINDA FERRELL
Date: 12/2/2006 1:03:54 PM
To: [email protected]
Subject: Re: [QUAD-L] Agency Help Over the Holidays
 
David 
I agree with you, all states should hold these Agencies more responsible. I 
know my last agency left me from Friday nite until Sunday with no help. I had 
dropped my mouthstick & my lifeline button was not close enough to reach. I 
just layed in bed & did a lot of meditating & singing.
Lindaf

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