Wow, What a nightmare!  Nobody should have to go through that.  I'm so glad you 
were able to get out of that home.  Stay strong... Dan

[EMAIL PROTECTED] wrote:       
   
   
   
   
   
   
   
  I lived in a nursing home three years.  I was kicked out a few weeks, after I 
moved in because my care was too much for the price they were getting from the 
state.  A woman that ran the Kansas for the improvement in a nursing home came 
to visit me and then a reporter came.  His story was spread throughout state 
and he got some kind of award.  The state came in and provided aides that I 
would hire myself to get me up and put me to bed.  At the end of the three 
years, the state wanted to provide less money and less aid.  I was at Craig 
rehab for a evaluation that the state was requiring.  When it was time for me 
to come home, I was told I didn't have a place to go as I had been evicted.  I 
stayed with my grandma for one week and then with my mother for three weeks 
until I could get a high-rise apartment They both worked .  My mother had three 
teenagers living with her in an apartment, as my parents had divorced.  A nurse 
was hired for the payment and I looked for my aides. 
 This was in 1980.  I was one of the first in three persons with disabilities 
to get care at home.
  I had this program for about one year and then the state started care from an 
office with caseworkers.

It was very depressing, other residents would come in my room if the door was 
open and possibly urinate on my bed.  I remember one weekend when I was gone , 
some staff were in my room and burned a hole in my blanket.  I had several 
items of clothing stolen also.  There was no privacy regarding staff, some of 
them would be very unwilling to help me even though they did my bowel routine, 
turn me, feed me my evening meal.  I remember waking up and a staff member was 
going to take advantage of me.  He was fired and hired again.  I was alway 
calling the health department for cockroaches and leaving me dirty.  I was not 
liked by the owners as you can imagine.  I remember going to class and baby 
cockroaches were crawling out of my tape recorder.
  When did home care start in other states?
Dana


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