This is really ironic, I was just talking to my brother yesterday about how 
asinine it is that we need prescriptions for things like catheters, changing 
kits, etc.  Who in their right mind is going to buy such an expensive product, 
but someone that really needs it.  I might be wrong, but I really don't see 
this being in the same venue as a controlled substance, like Valium or codeine.
Quadius (Billy from Tampa)

Danny Hearn <[EMAIL PROTECTED]> wrote:      Billy, I sure agree with you on 
that issue. About 3 years ago my son was getting married 5 hours out of town 
from me, So we did my once a month catheter change the night before we left 
town. I thought this is great now no worries at all, I'm good for a whole 
month.Well on the way down my cath got blocked up......this has only happened 2 
times ever in 6 years of wearing a supra-pubic, Urine was coming out of my cath 
entry hole site and I was getting some disreflexia.  It was so hard finding a 
medical supplier that had the right catheter and all the stuff needed to change 
it.......also when we did.....they had to get hold of our hometown doctors for 
approval for us to buy the needed stuff, that took 2 hours for approval , And 
when it was approved they charged us over $80 dollars for supplies that would 
have been less than $15 or $ 20 back home. Now we travel prepared no matter 
what ! ;-)   ((  Why do simple medical supplies need
 approval ))  If anyone knows let us know.            Thanks ,  Dan H.

"B. Kimberlin (Quadius)" <[EMAIL PROTECTED]> wrote:     I'll share with you my 
nightmare on my first overnight trip.
To keep it short, I ended up clogging a catheter late in the evening and of 
course I was thinking ahead, so I had packed a new catheter and catheter 
changing tray.  As I walked my PCA through each step, imagine my horror when I 
watched the tube, which fills up the balloon, in the catheter virtually explode 
just below the syringe insertion point.
  Knowing this catheter was completely useless, I almost in hysteria when I 
asked my sister-in-law where they had placed the clogged catheter and she 
revealed it had just been thrown away.  Not knowing what to do, I contemplated 
trying to get to the nearest hospital, but ended up pulling the old catheter 
out of the garbage, cleaning it as thoroughly as possible, irritating it like 
there was no tomorrow until it was finally cleared of the obstruction, and then 
we reinserted the catheter.
  Of course I ended up getting a UTI, however, at least I didn't have a stroke 
because of the dysreflexia.  Needless to say, now if I'm going to travel 
anywhere I have at least two backup catheters.  You just never know!  
Quadius


Amy Davis <[EMAIL PROTECTED]> wrote:
    One more piece of advice. Once we stayed in a motel in adjoining rooms with 
some of his family. We locked the security lock on the inside of our room door. 
We accidently let the adjoining door close and Si was locked in! We went to get 
another card key from the desk. But we could not get into the room because of 
the security lock. We had to call maintance to come in and use a special tool 
to get the door open. The bad thing was that he was on a vent in the room by 
himself. We were terrified that he would pop off or need to be suctioned before 
we could get in. 
  You never know what can happen when you travel..make sure you have 2 days 
worth of supplies and at least 1 extra of any piece of equipment that you use 
at home. We just pack a bag with things we may need...just in case... and leave 
it in the van. A different bag has supplies and clothes for the day. 
  And no matter how well I plan, I always manage to forget something. You 
sometimes have to improvise. Go with a sense of humor and a lot of patience. 
Take your time and don't hesitate to ask for help if you need it. People 
generally are glad to lend a hand.
  Most of all HAVE FUN!

Eric W Rudd <[EMAIL PROTECTED]> wrote:
      www.expedia.com
   
   
  Eric W Rudd
  [EMAIL PROTECTED]
   
    
  -----Original Message-----
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, February 05, 2007 8:51 PM
To: [email protected]
Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To?


Just curious if anybody would know if there is a list out there of hotels that 
have rooms in which one might use a lift (Hoyer) in order to transfer.  I have 
only traveled outside of my immediate area once since I was injured and 
thankfully I was able to call them in advance and make sure everything met my 
needs.  However, that was a government room.
Thanks,
Quadius


    
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