I sent my two cents worth by Reply to Joan's letter.  Sending mail by Reply
apparently does not make the Q-List, I felt this important enough to repeat
here.

 

In short, I have not met a spinal injured person with spasms who has kept up
with their range of motion.  Also on range of motion, I have neither met
anyone with contracted hands who also ranges fingers regularly.  Some people
use contracted hands to hold things pretty good.  I am too vain, even to
hold things better, to allow my fingers to contract so I still range fifteen
years post.

 

I would like using this forum to take a poll, or not.

  1) Who ranges, who spasms, and who have contracted hands?

 

Merrill

 

  _____  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32 PM
To: poajoan; [EMAIL PROTECTED]; [email protected]
Subject: RE: [QUAD-L] Fosamax for Osteoporosis

 

Yes Joan, I have the same kind of extensor spasms.  I have had a baclofen
pump for a bout 12 years and it is very effective in reducing the
spasticity.  Dan T.

poajoan <[EMAIL PROTECTED]> wrote: 

I am extremely fortunate in that I do not have severe spasms. I had more
spasms when I was newly injured than I do now. I have also learned to try
and relax before anybody tries to move me, because for not having any
muscle-I sure can tighten up a lot and be extremely hard to move. I don't
have the kicking type of spasms for the most part, but rather twist my whole
torso and straighten out arms and legs. Learning to live with our bodies,
and knowing each idiosyncrasy, is so important as so many others on this
list have said in the past.

 

Joan, C4 1990

 

  _____  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking
thing. I do have an appt with my doc but it's sooo frustrating being a quad
and trying to figure out what's going on with the body. Fosamax has joint,
muscle, and bone pain as a side effect but we also noticed discoloration on
the foley when it was changed. Don't know what's going on so I guess it's
time for ultra sounds and such.

diane

 

  _____  

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