I went to school in Detroit where in winter, my hands would get very cold  
and stiffen out like two paddles - they weren't worth having for pushing,  
grabbing or anything - just paddling.  I wouldn't give up my spasms for  
anything.  
After a few beers - I'm pretty much a ball of jelly.  can't  transfer - speak 
intelligently - or do much of anything.  Mirapex (an  Alzheimer med) helps 
slow them down to manageable. 
 
 
In a message dated 3/8/2007 8:33:28 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
I sent my two cents  worth by Reply to Joan’s letter.  Sending mail by Reply 
apparently does  not make the Q-List, I felt this important enough to repeat  
here. 
In short, I have not  met a spinal injured person with spasms who has kept up 
with their range of  motion.  Also on range of motion, I have neither met 
anyone with  contracted hands who also ranges fingers regularly.  Some people 
use 
 contracted hands to hold things pretty good.  I am too vain, even to hold  
things better, to allow my fingers to contract so I still range fifteen years  
post. 
I would like using  this forum to take a poll, or not. 
1) Who  ranges, who spasms, and who have contracted  hands? 
Merrill 
 
 
  
____________________________________
 
From: Dan  Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32  PM
To: poajoan;  [EMAIL PROTECTED]; [email protected]
Subject: RE: [QUAD-L] Fosamax for  Osteoporosis
Yes Joan, I have the same kind of extensor  spasms.  I have had a baclofen 
pump for a bout 12 years and it is very  effective in reducing the spasticity.  
Dan T.

poajoan  <[EMAIL PROTECTED]> wrote:   
 
I am extremely  fortunate in that I do not have severe spasms. I had more 
spasms when I was  newly injured than I do now. I have also learned to try and 
relax before  anybody tries to move me, because for not having any muscle-I 
sure 
can tighten  up a lot and be extremely hard to move. I don't have the kicking 
type of  spasms for the most part, but rather twist my whole torso and 
straighten out  arms and legs. Learning to live with our bodies, and knowing 
each  
idiosyncrasy, is so important as so many others on this list have said in the  
past.
 

 
Joan, C4  1990
 

 
  
____________________________________
 
 
From:  [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42  PM
To: [EMAIL PROTECTED];  [email protected]
Subject: Re: [QUAD-L] Fosamax for  Osteoporosis

 

 
 
 
In a message  dated 3/7/2007 2:59:32 PM Eastern Standard Time, 
[EMAIL PROTECTED]  writes:


 
Hi  Diana.
 

 
I have been taking  Fosamax for three years. I had no side effects from the 
drug, and after the  first 18 months, we retested, and there was about 20% 
improvement. The  doctor was very pleased, and so was I..
 

 
Joan, C4  1990


 
 
I've  just been going through a really bad time in the past couple weeks. My 
chest  and back feel extremely tight and my leg spasms have increased. This 
morning  my husband touched my leg and it went into it's spasm, kicking thing. 
I 
do  have an appt with my doc but it's sooo frustrating being a quad and 
trying to  figure out what's going on with the body. Fosamax has joint, muscle, 
and 
bone  pain as a side effect but we also noticed discoloration on the foley 
when it  was changed. Don't know what's going on so I guess it's time for ultra 
sounds  and such.

 
 
diane

 

 
 
  
____________________________________
 

 
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