I room & board with my caregiver but try not bothering her especially at
night.  

 

Water Solution:  I keep a round Britta water filter picture at bedside.
Inserted is the cut off tube from a new bedside urine bag.

 

Pills:  Tape pain meds or anything else to end of tube.

 

Blanket:  My service dog will pull them up or down.  Fan & heater are on
ECU.

 

I have a C5 injury requiring morning and go to bed care.  I want a more
independent setting but this works temporarily as I told myself for 7 years.
For years I thought marriage was my solution but at 55 years old, never
married I do not think it is going to happen.  I used to think a
relationship with a migrant would be a win win situation.  Care for green
card.  Same situation as marriage is I think it is not going to happen/  I
have always heard 75% of marriages are usually divorced with an SCI.  

 

mb

 

  _____  

From: Quadius [mailto:[EMAIL PROTECTED] 
Sent: Sunday, June 10, 2007 2:29 PM
To: [email protected]
Subject: Re: FW: [QUAD-L] How One Can live Alone

 

I have been living by myself for three or four years now.  Similar to Mike,
I rely on an ECU and have quite a few things I can do while I am in bed.  I
sleep on an air mattress now, but I used to have a lateral rotational
mattress.  Since I have always slept on a specialty mattress, this wasn't a
problem when I decided to go it alone.  My biggest concern was how to get
medication when no one was here.  Well, having access to an ECU and a
hospital bed which will move up and down with that ECU, I only had to figure
out how to get something to hold the medication so I could get it when I
wanted. 

Well, I had an old microphone stand with a boom on it (like a piano boom),
which I purchased from RadioShack, so, using paper tape I managed to get one
of those plastic film covers affixed to the edge of the boom so that I could
get that with my tongue and let the medicine fall into my mouth. 

In my particular case, however, I have a really good support system with
very trusted caregivers.  I couldn't do it otherwise.  I also have pretty
good neighbors around here, albeit they're not as good as my previous
neighborhood. 

Quadius

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