Stacy, I'm staying with my girlfriend Linda who is a quad and shes on the list.
Last week her nurse looked at her sores and told Linda's doctor. Now she has to
stay in bed and she is fighting it. I'm making her stay in bed until her doctor
see her this week. I'm going to set up her lap top so she can read your story.
Maybe then she will listen. Hope you are feeling better.
Wheelchair Warrior
Andrea
www.thewheelchairwarrior.com
Note: forwarded message attached.
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Stacy, I had to have bone removed from a pressure sore on my bottom just
last month. It had tunneled to the bone and set up both staph and strep. We
are treating it with antibiotics and a wound vac. It doesn't compare with
the hell that you have been through, but it is enough.
From: Stacy Harim <[EMAIL PROTECTED]>
To: [email protected]
Subject: [QUAD-L] horrific 4 months
Date: Sat, 1 Sep 2007 17:52:38 -0700 (PDT)
Hey all. What a few months. I broke my back. Of all ways, I was
transferring into my wheelchair. I didn't fall as one would guess. I
grabbed the wheels to pull myself the rest of the way and it snapped at T
11. For those of you who don't know I got encephalomyelitis 6 yrs ago and
left damage at T7. It hurt like hell even though it was below my level.
I was shipped to Hopkins and had a rod put in my back. It turned out that
I had osteomyelitis in my spinal column. A month later a cat scan revealed
that he didn't get it all. Another rod and another cage in the lumbar area
on top of nerves being snipped. Finally another surgery on my bday of all
days July 3 to remove a screw that was too close to my aorta. The
neurosurgeon feared erosion and it would come loose.
I went ahead and had surgery on the pressure sore AGAIN! I had spoke with
a reconstructive surgeon at Hopkins a few weeks before I snapped my back.
I had several tests done that revealed that there was an underlying problem
with the bone so I had some of it removed. I combined the last surgery. It
should have healed in only a few weeks because he used triple stitching in
layers. The skin healed but came apart again. I had to go back to Hopkins
from rehab and ended up getting another surgery. He said that he didn't
even see the dissolving stitches that should have lasted a few months. Now
I'm home and on bed rest. It's been a month. He took the stitches out and
there is still some drainage that he knows about but the pain can be
extreme. I know I will end up calling him next week.
I have definatly gone backwards. I have lost my balance, used to be able
to sit up in bed, and I have lost my transfer ability that I got back
slightly. I also have lost all stregnth that I am not allowed to work on
until my spinal restrictions are lifted. On top of it all, I found out
that I carry VRE in my wound. I am not sure if its in my intestines or not
but my bowels started messing up since about a week after my last surgery.
I'm not sure its the VRE or the zyvox I'm taking. I havent had it in a few
days so I wonder why they are acting up. I'm taking iron twice a day and
that isnt even slowing them down. Does anyone know about this? I'm going
to the doctors next week but there isn't information like a fellow person
that has been through it.
Any help would be appreciated,
Stacy
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