It does suck  but she is lucky to have you.  I live alone and my mom is staying 
with me who has health problems of her own.  She is driving me crazy because I 
have to listen to how she is hurting and tired all of the time.  She whines on 
top of it which drives me crazy.  I know it is for the best so I have to stay 
here.   I am allowed to get up for a little bit but I can't get up by myself 
anymore.  I got a new coordinator with the waiver and she was supposed to get 
more hours approved so someone could come in the morning and I'm still waiting. 
 I miss my old coordinator because she was really on top of things.  I'm going 
to call and bug her again tomorrow.  That is what  I have to do almost every 
time.  
The only time she called a lot is when she took over while I was in the 
hospital and she constantly called.

Stacy


----- Original Message ----
From: andrea murray <[EMAIL PROTECTED]>
To: [email protected]
Sent: Monday, September 3, 2007 12:12:18 PM
Subject: Fwd: FW: [QUAD-L] horrific 4 months


Stacy, I'm staying with my girlfriend Linda who is a quad and shes on the list. 
Last week her nurse looked at her sores and told Linda's doctor. Now she has to 
stay in bed and she is fighting it. I'm making her stay in bed until her doctor 
see her this week. I'm going to set up her lap top so she can read your story. 
Maybe then she will listen. Hope you are feeling better.
Wheelchair Warrior
Andrea
www.thewheelchairwarrior.com 
 
 
Note: forwarded message attached.


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tool.
Stacy, I had to have bone removed from a pressure sore on my bottom just 
last month. It had tunneled to the bone and set up both staph and strep. We 
are treating it with antibiotics and a wound vac. It doesn't compare with 
the hell that you have been through, but it is enough.


>From: Stacy Harim <[EMAIL PROTECTED]>
>To: [email protected]
>Subject: [QUAD-L] horrific 4 months
>Date: Sat, 1 Sep 2007 17:52:38 -0700 (PDT)
>
>Hey all.  What a few months.  I broke my back.  Of all ways, I was 
>transferring into my wheelchair.  I didn't fall as one would guess.  I 
>grabbed the wheels to pull myself the rest of the way and it snapped at T 
>11. For those of you who don't know I got encephalomyelitis 6 yrs ago and 
>left damage at T7.   It hurt like hell even though it was below my level.   
>I was shipped to Hopkins and had a rod put in my back.  It turned out that 
>I had osteomyelitis in my spinal column.  A month later a cat scan revealed 
>that he didn't get it all.  Another rod and another cage in the lumbar area 
>on top of nerves being snipped.  Finally another surgery on my bday of all 
>days July 3 to remove a screw that was too close to my aorta.  The 
>neurosurgeon feared erosion and it would come loose.
>
>I went ahead and had surgery on the pressure sore AGAIN!  I had spoke with 
>a reconstructive surgeon at Hopkins a few weeks before I snapped my back.  
>I had several tests done that revealed that there was an underlying problem 
>with the bone so I had some of it removed. I combined the last surgery. It 
>should have healed in only a few weeks because he used triple stitching in 
>layers.  The skin healed but came apart again.  I had to go back to Hopkins 
>from rehab and ended up getting another surgery.  He said that he didn't 
>even see the dissolving stitches that should have lasted a few months.  Now 
>I'm home and on bed rest.  It's been a month.  He took the stitches out and 
>there is still some drainage that he knows about but the pain can be 
>extreme.  I know I will end up calling him next week.
>
>I have definatly gone backwards.  I have lost my balance,  used to be able 
>to sit up in bed, and I have lost my transfer ability that I got back 
>slightly.  I also have lost all stregnth that I am not allowed to work on 
>until my spinal restrictions are lifted.  On top of it all, I found out 
>that I carry VRE in my wound.  I am not sure if its in my intestines or not 
>but my bowels started messing up since about a week after my last surgery.  
>I'm not sure its the VRE or the zyvox I'm taking.  I havent had it in a few 
>days so I wonder why they are acting up.  I'm taking iron twice a day and 
>that isnt even slowing them down.  Does anyone know about this?  I'm going 
>to the doctors next week but there isn't information like a fellow person 
>that has been through it.
>
>Any help would be appreciated,
>Stacy
>
>
>
>____________________________________________________________________________________
>Moody friends. Drama queens. Your life? Nope! - their life, your story. 
>Play Sims Stories at Yahoo! Games.
>http://sims.yahoo.com/

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