The worst things about being a quad are bowel programs and pain. Sometimes they go together.
I am lucky that I went 20 years as a quad not having to take any meds. I did have your standard tingling in the arms, feet, etc. But after a hip injury that caused excess bone to grow into the muscles, my pain level shot up. And of course being a quad, the pain will not localize in the hip only. I never had bad spasms until then either, but now my hands just hurt and spasm shut tight. The pain meds work some, but now that I have to raise the mgs I feel tired and can't concentrate enough to even watch movies. And when the pain gets bad, I start to dwell on things. Worry about my future and what If's. Maybe it's part AD, because I do get in mini panic worries. The docs don't think they should cut out the excess bone, because it's in the muscles and that would be bloody. Which of course could start more bone growing. Not unless enough bone grows to limit range of motion in my hip. I start to feel bad for myself then think about those of you (and others) who have to go through all of this, plus have to worry about help showing up and live alone at night. I know over all, I'm pretty lucky, but man it's no fun sometimes. :-) Greg
