Merrill, does your finger have a cut. It could be one of our low blood pressure 
quirks. Is it warm or surrounded by a red area. We are, as quads, susceptible 
to clots. This is worth mention in your living will as a blood clot may cost 
you an arm, a leg, a life or the worst, make you a member of the vegetable 
club. Your description left a lot of room for the imagination. I couldn't tell 
you if it is serious or just peculiar to you. 

I wish you the very best,
john


----- Original Message ----
From: William Willis <[EMAIL PROTECTED]>
To: [email protected]
Sent: Thursday, April 17, 2008 4:56:52 PM
Subject: FW: [QUAD-L] PAIN


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Merrill, you should have that checked immediately if not sooner.

From: [EMAIL PROTECTED]
To: [email protected]
Subject: FW: [QUAD-L] PAIN
Date: Thu, 17 Apr 2008 10:10:33 -0700

 
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If I do not hold my arm up, a finger becomes red with a narrowing at the hand 
which then is a thin red line as if a vane.  Does that sound suspicious?  I 
have a doc appointment in a month but maybe I should go to Urgent Care.
 
Merrill
 

From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50 AM
To: Lori Michaelson; QUADLIST
Subject: Re: [QUAD-L] PAIN

 
SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS 
ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL WAS 2226!

 

NICKI

 

 

Lori Michaelson <[EMAIL PROTECTED]> wrote:

I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least eliminate 
the possibility of a clot since I just had two surgeries with that doctor and 
that is a primary thing to worry about after surgery.  But noooooo... I thought 
it was probably just swelling and I should wear some of those tight hose.  
QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very 
hard.  I finally read an article on the net (I was very new to the Internet 
back then and only knew how to look things up) and one doctor in Washington 
state had an article about spinal cord injuries and folks with MS.  A sentence 
said "If one leg is significantly larger than the other... it could indicate a 
clot."  All I knew was that "a clot" was not good but I had no idea that I had 
a DVT whereby all I had to do was move a certain way to have it move directly 
to my lungs to kill me.


The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. 
MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE 
BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKI

Quadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood clots?
Quadius
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 
I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 

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-- 
Lori 
C4/5 complete quad, 27 years post
Tucson, AZ 
 
  

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