Dear Roy,
Are we discussing the PIE system? If you invented that, you have my respect and 
congratulations. I don't care if you are just selling them. I'm glad to know 
you. I figure I'll need one in a few years. Mostly, I enjoy my throne time and 
need minimal assistance. When it becomes troublesome, I had every intention of 
getting a prescription for that device. It isn't BS or snake oil. I've seen it 
used and frankly, I was impressed. It was used on a Parkinson's patient with 
Mass Bowel Syndrome.
I think the guy lost 15 lbs. 
He keeps it in his room and freaks when people try to move it. 

Best wishes,
john


----- Original Message ----
From: Roy Abell <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: [email protected]
Sent: Friday, May 9, 2008 5:56:15 PM
Subject: RE: [QUAD-L] My name's Luis

 
Dear Louis... I was found guilty the other day about trying to
encourage members of our blog society about my bowel prosthetic device. 
Being an MS victim you may find in the future that your bowel turns into a
neurogenic bowel and our product is recognized as a prosthetic device which is
reimbursable under insurance plans.  Please review our website 
http://www.mybowel.com if you develop your
genetic bowel because this product is FDA approved and every quadriplegic
customer ...we have is loving it.
 
Yes, I own the company and I am also a quadriplegic and I want
to help everyone that has neurogenic bowel problems.  For those of you
that don’t know a prosthetic medical device is a medical device that
replaces the function of a permanently dysfunctional internal organ, i.e.
dialysis for the kidneys and our product for neurogenic bowel ...a permanently 
disabled
colon.
 
Roy
 
From:[EMAIL PROTECTED]
[mailto:[EMAIL PROTECTED] 
Sent: Thursday, May 08, 2008 4:32 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: [email protected]
Subject: Re: [QUAD-L] My name's Luis
 
Welcome Luis
 
The ABC drug therapy programs have done much to stabilize
the effects of MS.  Some of the radical therapies like
bee,snake venom,
and botox have also been of benefit to some.  
 
I hope you are registered and involved with local MS Support
Groups in
your area.
 
Best Wishes
 
 
In a message dated 5/8/2008 3:18:21 P.M. Central Daylight Time,
[EMAIL PROTECTED] writes:
Welcome to the list Luis,
I really do hope you stay around and enjoy all of the company
these people provide.  It is a wealth of information and friendship you
really can't find anywhere else.
Quadius

 
On 5/6/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]>
wrote:
I live in Hoboken NJ and have Progressive MS now for about 3 years. I was dxd 
in 1990 but the symptoms can be traced back to 1976 July 4 Bicentennial Year, 
while watching the tall ships parade sailing along the Hudson river, I felt 
dizzy and lost vision of left eye for a few minutes, my father took me to the 
shade of a tree and wet papers an placed them on my head, in 15 minutes I felt 
some relief.
I forgot about the case, began to fall specially in the subway on my way to 
work in Brooklyn NY.
Once I fell and hit my head and side of face, stopped short of a few feet from 
the rails.
These problems forced me to "put my papers in" after 34 years teaching at 
BrooklynTech HS.
Is now 11 years I don't work and my condition's declined quite rapidly, can use 
right hand and drive short distances. Using chair 24/7 and I AM NOT ONE OF 
THOSE THAT SAY "WHEELCHAIR BOUND" I see the wheelchair as a liberation that 
allows me to move and participate whenever I feel strong enough and is not too 
cold and/or windy. Summer time heat and humidity are my nemesis so if you come 
to see there are few "perfect days" I can really enjoy.
Practice a few hobbies: Amateur Radio call's N2GKI, I am a short wave listener, 
collect stamps with full cancellation, read avidly and at times when my head 
allows it I play chess, nothing spectacular.
I don't force myself to do anything, I don't compromise with anybody, my time 
is MINE and only do what I am sure I can do w/o suffering consequences.
I like to hear from other MSers, quads, paras etc. There is always something we 
can learn in those exchanges. Hope to hear from some, lots of Health,
Luis M Méndes
Hoboken NJ
         LiveWell * Laugh Often * Love Much!
______________________________________________

Some people perceive our life to be almost worse than it's worth living.

Condescending attitude" piss me off!
_______________________________________________

My memory's not as sharp as it used to be. Also, my memory's not as sharp as it 
used to be.
_____________________________________

IN SOLIDARITY


'You don't stop laughing when you get old, 
You get old when you stop laughing!!' 














 
 

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