As you can tell, I enjoy giving Roy a hard time, lol.  Yes, he has a  
valuable product that most can not afford and most may not the need to afford  
such a 
product.  It is an invasive product and insurance companies are  afraid of 
any invasive product.  This also include Q-Tips and Ducs'.   For  those with 
absolute need, without recourse, the PIE system can be very  beneficial.
For those who can still handle a Volkswagon, you don't need a Sherman  Tank.
Best Wishes Roy
W
 
 
In a message dated 5/18/2008 7:05:02 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
Thank  you John... for the compliments.  Yes, it is almost monthly that I 
hear  testimonials from our users as to the miracles that has happened to their 
 
lives.  I just received an inventory count and we only have 12  left.  So... 
for anyone on this list... I will give you a 50% discount on  one of these 
units.  The only condition is you must call 877-482-6043 and  reserve a unit 
with 
Jimi Avery our general manager.  All new sales will  require using a credit 
card and there is a good chance you can receive  reimbursement from your 
insurance company with you submitting after your  purchase. 
Tell  him about my offer.  Thanks again... Roy 
 
 
From: John S.  [mailto:[EMAIL PROTECTED] 
Sent: Saturday, May 10, 2008 2:01  PM
To: [email protected]
Cc:  [email protected]
Subject: Re: [QUAD-L] My name's  Luis

 
 
Dear Roy,
Are we  discussing the PIE system? If you invented that, you have my respect 
and  congratulations. I don't care if you are just selling them. I'm glad to 
know  you. I figure I'll need one in a few years. Mostly, I enjoy my throne 
time and  need minimal assistance. When it becomes troublesome, I had every 
intention of  getting a prescription for that device. It isn't BS or snake oil. 
I've seen it  used and frankly, I was impressed. It was used on a Parkinson's 
patient with  Mass Bowel Syndrome.
I think the guy lost 15 lbs. 
He keeps it in his  room and freaks when people try to move it. 

Best  wishes,
john 
 
----- Original Message  ----
From: Roy Abell <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED];  [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: [email protected]
Sent:  Friday, May 9, 2008 5:56:15 PM
Subject: RE: [QUAD-L] My name's  Luis 
 
Dear  Louis... I was found guilty the other day about trying to encourage 
members of  our blog society about my bowel prosthetic device.  Being an MS 
victim  you may find in the future that your bowel turns into a neurogenic 
bowel 
and  our product is recognized as a prosthetic device which is reimbursable 
under  insurance plans.  Please review our website _http://www.mybowel.com_ 
(http://www.mybowel.com/)  if you develop your genetic bowel  because this 
product 
is FDA approved and every quadriplegic customer ...we  have is loving it. 
Yes,  I own the company and I am also a quadriplegic and I want to help 
everyone  that has neurogenic bowel problems.  For those of you that don’t know 
a  
prosthetic medical device is a medical device that replaces the function of a  
permanently dysfunctional internal organ, i.e. dialysis for the kidneys and  
our product for neurogenic bowel ...a permanently disabled  colon. 
Roy 
 
 
From:  [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, May  08, 2008 4:32 PM
To: [EMAIL PROTECTED];  [EMAIL PROTECTED]
Cc: [email protected]
Subject: Re:  [QUAD-L] My name's Luis

 
Welcome  Luis
 

 
The  ABC drug therapy programs have done much to  stabilize
 
the  effects of MS.  Some of the radical therapies like bee,snake  venom,
 
and  botox have also been of benefit to some.  
 

 
I  hope you are registered and involved with local MS Support Groups  in
 
your  area.
 

 
Best  Wishes
 

 

 
 
In a  message dated 5/8/2008 3:18:21 P.M. Central Daylight Time, 
[EMAIL PROTECTED]  writes:

 
Welcome  to the list Luis,
 
I  really do hope you stay around and enjoy all of the company these people  
provide.  It is a wealth of information and friendship you really can't  find 
anywhere else.
Quadius



On  5/6/08, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED])  <[EMAIL PROTECTED] 
(mailto:[EMAIL PROTECTED]) >  wrote: 
 
 
     
 
 
I live  in Hoboken NJ and have Progressive MS now for about 3 years. I was 
dxd  in 1990 but the symptoms can be traced back to 1976 July 4  Bicentennial 
Year, while watching the tall ships parade sailing along  the Hudson river, I 
felt dizzy and lost vision of left eye for a few  minutes, my father took me to 
the shade of a tree and wet papers an  placed them on my head, in 15 minutes I 
felt some  relief.
 
I forgot  about the case, began to fall specially in the subway on my way to  
work in Brooklyn NY.
 
Once I  fell and hit my head and side of face, stopped short of a few feet  
from the rails.
 
These  problems forced me to "put my papers in" after 34 years teaching at  
BrooklynTech HS.
 
Is now  11 years I don't work and my condition's declined quite rapidly, can  
use right hand and drive short distances. Using chair 24/7 and I AM  NOT ONE 
OF THOSE THAT SAY "WHEELCHAIR BOUND" I see the wheelchair as a  liberation th
at allows me to move and participate whenever I feel  strong enough and is not 
too cold and/or windy. Summer time heat and  humidity are my nemesis so if you 
come to see there are few "perfect  days" I can really enjoy.
 
Practice  a few hobbies: Amateur Radio call's N2GKI, I am a short wave 
listener,  collect stamps with full cancellation, read avidly and at times when 
 my 
head allows it I play chess, nothing  spectacular.
 
I don't  force myself to do anything, I don't compromise with anybody, my 
time  is MINE and only do what I am sure I can do w/o suffering  consequences.
 
I like  to hear from other MSers, quads, paras etc. There is always something 
 we can learn in those exchanges. Hope to hear from some, lots of  Health,
 
Luis M  Méndes
 
Hoboken  NJ
 
LiveWell  * Laugh Often * Love Much!
______________________________________________

Some  people perceive our life to be almost worse than it's worth  living.

Condescending  attitude" piss me off!
_______________________________________________

My  memory's not as sharp as it used to be. Also, my memory's not as sharp  
as it used to  be.
_____________________________________ 

IN  SOLIDARITY


'You  don't stop laughing when you get old, 
You get old when you stop  laughing!!' 

















 
  
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