Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I
wonder how much all of the AD wear-n'-tear through the years has had on my
heart/other organs?
~Peace~
Tim c5-c6
WhoopieKat.com
--- On Tue, 1/20/09, John S. <[email protected]> wrote:
From: John S. <[email protected]>
Subject: Re: [QUAD-L] Baclofen q's....
To: "Steve White" <[email protected]>, [email protected]
Date: Tuesday, January 20, 2009, 9:03 PM
AD is autonomic dysreflexia. Most quads experience this type of a nerve
disorder from time to time. Your body generates enough pain that it creates and
electrical pulse that somehoe sends signals into the autonomiuc nervous system
where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ
failure may occur. Stroike and heart attack can also happen. It is a serious
problem. So, what does everyone else take when AD begins.
john
--- On Tue, 1/20/09, Steve White <[email protected]> wrote:
From: Steve White <[email protected]>
Subject: Re: [QUAD-L] Baclofen q's....
To: [email protected]
Date: Tuesday, January 20, 2009, 4:21 PM
What is AD?
Summer White
----- Original Message -----
From: John S.
To: [email protected]
Sent: Tuesday, January 20, 2009 11:18 AM
Subject: Re: [QUAD-L] Baclofen q's....
I had the same choice back in the 80's when baclophen was being touted as the
end all be all of controlling spasms. I was taking about 30-40 mg of valium a
day and pretty addicted. (had been on Valium for 13years). Just to start the
change meant detoxing from one drug to another. I find that detoxing involves
AD, or at least a very good chance of it. I mean the kind where you can't talk
anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is
not my idea of a sucessful attempt.
I had a friend that went for baclophen. He was a C-4 and felt valium was old
fashioned. A year later hes having to take a lot of baclophen to control
spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one
malfunctioned and couldn't refill after a month.
Rush back to Texas. Second pump surgery screws up and he gets a staph
infection. He died on a plane between Huston and Cincinnati while the pilot was
turning the plane around. In all sincerety, I don't believe most doctors or
nurses have a real understanding of AD
I know that I can pop six to eight Valiums to get AD into control if need be. I
had an anti-seizure drug but it didn't work as well or as fast as simply taking
a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all
means, search for a drug that will work.
What do folks on here take for their AD?
I find that it is easy to tell when I need a valium and it has the side effect
of making me far less suicidal or depressed.
john
--- On Mon, 1/19/09, t crook <[email protected]> wrote:
From: t crook <[email protected]>
Subject: [QUAD-L] Baclofen q's....
To: "q-list" <[email protected]>
Date: Monday, January 19, 2009, 1:29 PM
I would like to know who uses baclofen and the side effects you experience;
like hypotension (which I already suffer from), or any side effects. I took
this drug right after my accident in '88, but that was 20 yrs. ago and my
memory did not log any recollection of the side effects.
Below is a news link; a doctor claims it worked for his addiction to alcohol,
it got me thinking of changing my spasm medicine. I do not suffer from alcohol
addiction; but I take diazapam for spasms, and was going to talk to my doc
about baclofen for the spasms. I was just recently diagnosed with inherited
Cardiomyopathy; so I was wondering about any cardio side effects as well, which
I will find out when I have another echo cardiogram next week.
http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861&cl=11605466&ch=4226723&src=news
Tim c5 c6
WhoopieKat.com
