I wonder @ this too! _____
From: t crook [mailto:[email protected]] Sent: Wednesday, January 21, 2009 11:10 AM To: q-list Subject: Fw: Re: [QUAD-L] Baclofen q's.... Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 <http://www.whoopiekat.com/> WhoopieKat.com --- On Tue, 1/20/09, John S. <[email protected]> wrote: From: John S. <[email protected]> Subject: Re: [QUAD-L] Baclofen q's.... To: "Steve White" <[email protected]>, [email protected] Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White <[email protected]> wrote: From: Steve White <[email protected]> Subject: Re: [QUAD-L] Baclofen q's.... To: [email protected] Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White ----- Original Message ----- From: John S. <mailto:[email protected]> To: [email protected] Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's.... I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook <[email protected]> wrote: From: t crook <[email protected]> Subject: [QUAD-L] Baclofen q's.... To: "q-list" <[email protected]> Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861 <http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861&cl=11605466&ch=422 6723&src=news> &cl=11605466&ch=4226723&src=news Tim c5 c6 <http://www.whoopiekat.com/> WhoopieKat.com
