Hiya Kandy! Thank you for your posting and we wish and hope the best for AL. C-4 Complete, doesn't begin to tell us the story as the G-Tube and Trach present all kinds of challenges that most will not face in their lives.... I hope. The 8 pages of meds seem over the top, but then again, we are not the doctor and know the case history. What hospital or rehab center is he located at. That would be a good start. Have you sat in on any of the team conferences held weekly by AL's support team. That would include his doctor, OT, PT, RT, Social Worker, and Discharge Planner. These meetings are so valuable in helping you to discover some of his future needs. The sip n puf notifier system is better then anything he can squeeze. Lining up a home staff to make sure his needs are addressed 24 hours a day is VERY important. Soon you will learn that the further you remove yourself from hospital and rehab technology... the more you will have to learn what it takes to handle and care for AL in an emergency. Making sure that your house is properly marked with address numbers and that the local EMT know where your house is in the dark of night. Learn, and Learn again about "AD" Keep posting and Best Wishes In a message dated 4/4/2009 6:16:39 P.M. Central Daylight Time, [email protected] writes:
Hi everyone, My Husband (AL) became a quad on 5/10/08 from auto accident. He has been hospitizied ever since. I am working at getting him home on a CAC Waiver. All the documentation has been filled out, now I am just wanting to see if the state will approve. I need some advice, on his medications and on some assisted technology products. First of all, Al has 8 pages of medications he is currently taking. These include Oxycoden and baclofen. His Oxy is on a PRN in which he gets 20 mg every 3 hours up to 5 times a day. When he takes it he gets headaches, so he has to take tylenol with it or right after it. I am concerned about his daily high dosage and hoping that his medications will be reduced soon... He is scheduled for baclofen testing for pump at end of month. If that works-will that help reduce his pain so the oxycoden can be reduced? The oxycoden really binds him up and we are having such a hard time getting him a scheduled bowel program. He goes from one extreme to another. Either he has diaherra or he gets so bound up it has to be dug out of him. He is on different softners, gets stimulated, plus we use the magic bullet as needed. My husband also takes a lot of vitamins, prosource and calcium, and benefiber is this something he will take forever as well? Currently he is fed from a peg tube and has a trach, but hopefully both will come out. His vocal cords are paralyzed but they have started moving. So he is now able to eat "theraputic feedings". Which actually just got approved for me to feed him soft solids. He ordered his first meal yesterday. It was wonderful. Any advice or knowledge you could share about his medications would be much appreciated. Also does anyone know what type of call light - where to get one for when my husband comes home. Currently he puffs in a straw to call the nurse. I need something like that in my house that would make a noise so I can hear him if I am not in same room. Thanks for your help. Kandy (wife of C-4 Complete) **************Hurry! April 15th is almost here. File your Federal taxes FREE with TaxACT. (http://pr.atwola.com/promoclk/100126575x1220239440x1201335902/aol?redir=http:%2F%2Fwww.taxact.com%2F08tax.asp%3Fsc%3D084102950001%26p%3D82)
