Good questions, Q!

--- On Fri, 4/10/09, Quadius <[email protected]> wrote:

From: Quadius <[email protected]>
Subject: Re: [QUAD-L] Medications
To: "Kandy Vogelpohl" <[email protected]>
Cc: [email protected]
Date: Friday, April 10, 2009, 5:41 PM


Welcome to the list.  Hopefully you will stay more than a little while.

  I am glad I read wheelchair's response before I wrote to you.  I would 
suggest that you speak with a social worker and try to attend some of the 
meetings so you can get a little more up to speed with what's going on in his 
plan.

I would also try dividing this up into separate e-mails with questions.  It 
would probably give individuals who have good ideas for specific things the 
ability to answer those questions without delving into some of the others.

What type of return does he have?  Is he able to move his arms?  Is his 
diaphragm working at all?  Are they trying to wean him from the ventilator?  Is 
there a possibility he will be able to eat normal foods, if so when do they 
anticipate that occurring?
These are just a few of the questions I would be asking them.
Good luck and don't hesitate to ask more questions here.
Q


On Sat, Apr 4, 2009 at 7:16 PM, Kandy Vogelpohl <[email protected]> 
wrote:



Hi everyone,
 
My Husband (AL) became a quad on 5/10/08 from auto accident.  He has been 
hospitizied ever since. I am working at getting him home on a CAC Waiver.  All 
the documentation has been filled out, now I am just wanting to see if the 
state will approve. I need some advice, on his medications and on some assisted 
technology products.
 
First of all, Al has 8 pages of medications he is currently taking.  These 
include Oxycoden and baclofen.  His Oxy is on a PRN in which he gets 20 mg 
every 3 hours up to 5 times a day.  When he takes it he gets headaches, so he 
has to take tylenol with it or right after it.  I am concerned about his daily 
high dosage and hoping that his medications will be reduced soon...  He is 
scheduled for baclofen testing for pump at end of month.  If that works-will 
that help reduce his pain so the oxycoden can be reduced?  The oxycoden really 
binds him up and we are having such a hard time getting him a scheduled bowel 
program.  He goes from one extreme to another.  Either he has diaherra or he 
gets so bound up it has to be dug out of him.  He is on different softners, 
gets stimulated, plus we use the magic bullet as needed.
 
My husband also takes a lot of vitamins, prosource and calcium, and benefiber 
is this something he will take forever as well?
 
Currently he is fed from a peg tube and has a trach, but hopefully both will 
come out.  His vocal cords are paralyzed but they have started moving.  So he 
is now able to eat "theraputic feedings".  Which actually just got approved for 
me to feed him soft solids.  He ordered his first meal yesterday.  It was 
wonderful.
 
Any advice or knowledge you could share about his medications would be much 
appreciated.
 
Also does anyone know what type of call light - where to get one for when my 
husband comes home.  Currently he puffs in a straw to call the nurse.  I need 
something like that in my house that would make a noise so I can hear him if I 
am not in same room.
 
Thanks for your help.
 
Kandy (wife of C-4 Complete)
 


-- 
Quadius
C2-3 incomplete
13 years post injury

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