Thanks John for summing that up regarding Mandelamine. My time at the computer is very limited these days. One more thing (in case someone missed it) about a couple of posts I made here whereby I could not get my urine acidic no matter what I did. If I wanted to try Mandelamine for example. In the article whereby I found that your urine needs to be acidic (ideally a '6' on the urinalysis test strip) for Mandelamine to work -- *it also said* to limit your potassium intake to lower your urine pH. I had been eating a banana a day and that was just enough to keep my urine always above a '7.5' on the urinalysis test strip.
I stopped eating bananas and wala! Doctors don't know everything but I feel that my urologist should have known how big a part potassium plays with the urinary system and therefore asked me if I was taking in a lot of potassium. One more example of how the Internet (and myself) solved many a problem for me when doctors have failed. Lori Michaelson Age - 44 C4/5 complete quad, 29 years post Tucson, AZ On Sat, Jun 6, 2009 at 12:47 PM, John S. <alcibiat...@yahoo.com> wrote: > Mandelamine is an anti-infective but it is real medicine and as Lori > said, you must keep your urine acidic. A pH level of 6 would be great. You > may need to take more vitamin C as this is what creates the acid environment > and causes the Mandelamine to change chemically into formaldehyde. Bacteria > simply can not survive in it. It is important that your urologist agree with > the treatment and your aides or nurse check your urine with a PH strip to be > sure your staying acidic. > I usually tell people to use pro-biotics while treating any bacteria > infection. It is the same with Mandelamine. It has side effects and you can > look it up at WebMD. Do not be afraid to discuss it with your doctor. > I think I mentioned there is a solution that can be injected through your > catheter into your bladder that can also destroy harmful bacteria colonies. > Do not reuse the catheter flush kits. They really will create another > infection or depending on what was used to clean it, you could actually be > injecting that cleaning substance into your bladder. It just is not worth > the risk. > A catheter is an open source of infection. This is why many quads must be > able to live with some degree of infection. The trick is not to simply get > use to having an infection, but learning to keep the infection to a minimum. > There is a limit to how many times you can take an antibiotic before your > body and the bacteria simply do not respond to it. Mandelamine comes > in different names. > Remember to drink a plenty of water. Don't overdo it. You can wash out your > electrolytes and mess yourself up. > I've heard quads on here also using UTI Clear. While it contains other > ingredients, I noticed it used an obscure name for Mandelamine and also > contained 1g of vitamin C per daily dose. > It isn't cheap, but if it works, I'd buy it. I honestly feel your better > off talking to your doctor, getting a script and controlling your UTI's with > your doctor involved. UTI Clear was not created with quadriplegics in mind. > Not many things are. > Do ask about probiotics. They are finally discovering that good bacteria > can be very helpfull against bad bacteria. It simply eats the food and > starves the bad bacteria. Simple and for women esp. it is very important. > > best wishes, > john > > > ------------------------------ > *From:* andrea murray <emma_wolf2...@yahoo.com> > *To:* quad <quad-list@eskimo.com> > *Sent:* Saturday, June 6, 2009 1:47:23 PM > *Subject:* Fw: Re: [QUAD-L] Uroquid > > > I have had Bludder infection all winter lone, I have a nurse come and > change my cath every other week. I have no choice no family. I have been > taking vitamin C 1000cc a day. I have tried changing cath bags and > everything.What is Mandelamine? > WW > > --- On *Fri, 6/5/09, John S. <alcibiat...@yahoo.com>* wrote: > > > From: John S. <alcibiat...@yahoo.com> > Subject: Re: [QUAD-L] Uroquid > To: "Danny Hearn" <ddh...@sbcglobal.net>, quad-list@eskimo.com > Date: Friday, June 5, 2009, 5:09 PM > > have you tried Mandelamine? You should drink a lot and for it to really > work, take vitamin C untill your urine becomes as acidic as your doctor > thinks it should be with that dosage of Mandelamine. > It is great against persistent bacterial infections. As it leaves your > kidneys it turns to formaldehyde. > You should take it the same time each day and never stop unless your doctor > says to. Only take it if your doctor agrees. It is not an anti-biotic but if > you suddenly stop taking it or take it off and on you may create hard to > kill bacteria. It can be gotten in the mail without a script. I use to have > an indwelling cath and I wouldn't consider not taking something to deal with > the oncoming infections. If you take acidophylus you reduce your chances > of getting diarrhea or constipation related to drugs and anti-biotics. > Acidophylus and other pro-biotics will help by out eating the bad bacteria > and killing or keeping it in control. > If your attaching an indwelling catheter to a bed bag, clamp the catheter > closed while the bag is lifted higher than the connection to you. Anything > in the bag line can run back into your bladder giving you an instant > infection. Less than a drop is more than enough. For some reason, the bags > have an anti-backflow valve at the wrong end of the line. > There use to be an anti-infective solution that was used to flush the > bladder each day. I can't seem to find it or remember its name. You may want > to bring it up with your Urologist. > It is important to fight infections in ways that do not create superbugs or > reduce the efficacy of drugs used on superbugs. Don't get too freaked out > about infections because if you have an indwelling catheter for a week, you > have an infection. Reducing the infection to one you can live with is > possible. > Always use sterile technique and hope for a relative to change the > catheter. (better the germs you know) The agency nurses are often not > sterile and just dropped off a load of bacteria from everyone they have > visited for the last week. > I'm sure others have ideas to reduce reccurant infections. > > best wishes > john > > ------------------------------ > *From:* Danny Hearn <ddh...@sbcglobal.net> > *To:* quad-list@eskimo.com > *Sent:* Tuesday, June 2, 2009 12:02:39 PM > *Subject:* [QUAD-L] Uroquid > > Do any of you take uroquid to help with bladder infections? if so how > often or for how long of a period of time do you take it/? i have had uti > for a long time and my doc had the pic line removed after a short treatment > of an IV drug called fortaz. He took me off treatment even though my lab > results still showed I had a uti., saying he was afraid of a super bug > forming.------ Anyway I'm trying to come up with some treatment or > help-----my urine smells very bad. thanks, Dan H. > > > > -- Lori C4/5 complete quad, 27 years post Tucson, AZ
