Dan, it is how they keep us and our issues out of the way. I don't know about 
the others. Here in Ohio the ILC is almost down to an answering machine. 
Without money our influence in politics is file 13 letters. 
I dont mind doing stuff I can get under the table pay for. If I lost my waiver 
I'd be in a nursing home in a heart beat. I do taxes for tips at a couple local 
churches and family members. 
i try to keep costs down. I track what I spend on everything. 1100 is your 
share? I pay 35% for rent waiver picks up almost all other medical expenses. I 
put the money from undertable income on debit cards. $50 a month for 
transportation. I just budget it so I have a few hundred for gifts and cards. 
That $1100 share is a budget buster. I got to admit I have made money by 
begging. Maybe your family would back you if you learned to trade options. I 
know there are a few members of the group that dont just play in the fantasy 
contests for stocks.  i wish you luck.

john.                                                                    



________________________________
From: Daniel Espinoza <da...@thespinalcordinjured.net>
To: quad-list@eskimo.com
Sent: Sunday, August 30, 2009 6:05:53 AM
Subject: [QUAD-L] frustrations with Medi-Cal and Medicare


 
I seriously don't understand how you guys live off this, I get 1400 a month and 
then I have to pay about 1100 for my share of cost. Luckily I'm not going to 
get kicked out for not paying rent but I am supposed to and that's beside the 
point. It gives me $300 for rent, food, utilities, and any medical supplies not 
covered. I think it's really screwed up, I'm going to call them on Monday and 
try to figure this stuff out but before I do that I would really like to know 
what you guys think? It's almost like I have no choice but to live in a nursing 
home, which I would imagine would cost more than what they give me a month. I 
live in Southern California so maybe that has something to do with my 
frustrations because everything seems to be a lot more expensive here than 
elsewhere. I really don't want to move because all of my family lives here, and 
they take care of me when my caregivers don't.
Thanks in advance for any advice you guys have for me. I've been a quad for a 
little over three years now so I really don't understand the ins and outs of 
all of this just quite yet….
 
Daniel Espinoza 26/m/California
 
Occupation before accident - Network engineer / SR. Network security engineer 
What happened:
I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a 
Quadriplegic.
I had a Traumatic_brain_injury from blood going to my brain from my spinal 
cord, but its getting better with time.
I am off a ventilator "woohoo" however only half of my diaphragm works right 
now "due to an asymmetric spinal cord injury....."
 
http://spinalcordinjured.net/
http://www.myspace.com/dannylnx


      

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