Hi Dana, Greg, Dan and the Rest 'O the Gang! Dana, I'll be starting with Forteo in a couple months. I was wondering how long you've used it and if you've noticed any changes (as in anything *other than* the bone loss/gain/strengthening) such as how well (or not) any other meds might work? Bowel and/or bladder changes? Stuff like that.
I was taking Fosamax for a few years but then an endocrinologist checked me out and saw that after all my time in bed after an accident a couple years ago I was still "dumping" a lot of calcium. I was losing more through urine than I could take in... he said he'd never seen a loss as high as mine (and he's been in the business a Lonn..ngg time!). He tried me on one 3-month IV dose of Boniva (instead of the once-a-month pills) and the IV seemed to help. So he switched me to Reclast. After 2 yrs of Reclast I'm no longer losing... but still not gaining. So now we're switching to Forteo hoping to begin rebuilding/strengthening some bone. I just had a DEXA Scan that showed a little improvement. My biggest worry now is an increase in pain that might come if Forteo can accelerate the development of bone tissue. I have a hip that was pretty messed up from ischial surgeries followed by a more recent, nasty bout with MRSA **in** (and through) my hip bone. My hip always hurts like hell and my back --which ended up fragile enough to crack after 9-months bed time, needing a "sacroplasty" injection of cement-- contributes to burning, shooting, or an "over-stretching-feeling" type back and leg pain. I guess I'm also wondering if you (or maybe Greg or others) have heard of increased increased incidences of HO when using Forteo. I know it's fairly knew but I'll never be able to read everything out there about it! HO is ONE problem I haven't had and hope to "All-That's-Good-and-Decent" that I never have to. I doubt many docs would think about upping my pain meds. I'm already on stuff that makes Oxy or Vicodin feel like an aspirin for an amputation! Thanks for any info or thoughts! Sure wish I was able to get "on-list" more often but I've been super busy (even after leaving work)! Best wishes to Everyone, mi Amigos! --Tod Santee On Thu, Oct 27, 2011 at 2:37 PM, <[email protected]> wrote: > ** > Hi Greg, > > I guess HO is another one of those quadriplegic conditions we have to > check for. > I am on forteo injections daily and re-clasp I just got the weeks ago. My > doctor wants to do both treatments because my bone density deteriorated. > The hospital told me that they had positive results in bone density with > reclapce that is done yearly. > Dana. > In a message dated 10/24/2011 4:01:23 P.M. Central Daylight Time, > [email protected] writes: > > I took Oxycontin for awhile, but insurance changed and now I take > MS-Contin. > They are the only thing that helped. Though they did not help for my > common quad stuff pain, tingling and burning, etc. > Osteoporosis is more of a bone loss I think. H.O. is more of an excess > bone growth. > But I do have both. I have osteo in some areas, but H.O. on my hip. > I take meds for the osteo now, some pill once a week with loots of water. > No doc mentioned a connection. > Greg > > > Hi Greg, > > > > So sorry to hear about your pain problems associated with HO. Thank > > you for describing what that term means, as I had never heard of > > this before. What pain medication works best for you? We have often > > talked about pain medication on the list. That is such a > > unpredictable condition especially if it can inhibit joint > > movement. Is this anything like osteoporosis? God bless you and I > > will be praying for you. Dana > > C4-5 complete, 37 years post, 58, I was a passenger in a motor > > vehicle accident at the age of 20 > > In a message dated 10/23/2011 3:16:27 P.M. Central Daylight Time, > > > [email protected] writes: > > > >> The > >> term heterotopic ossification (HO) describes bone formation at an > >> abnormal anatomical site, usually in soft tissue. Cause is often > >> an injury, even > >> just a hard bruise. A large precent of SCI's have some form of > >> (HO). It can > >> grow big enough to prevent joint movement. Because it's growing > >> in the muscle, it is very painful. And because we can't feel it, > >> the pain can show up in different areas. Mine is an egg size lump > >> on my hip. My thigh feels > >> like it's being crushed, it even shows up in my dreams. I often > >> dream my leg is on fire or my leg is crushed in a car door. The > >> pain caused such bad > >> spasms, I ended up in the ER twice in 2 days before they found > >> the cause. > >> My legs and abdomen were cramping so hard I was throwing up. And > >> I thought my heart was spasming and it was harder to breath. Once > >> it's under > >> control, stopped growing. Pain meds can help a lot, but they > >> cause all kinds of bowel troubles. I've tried just about > >> everything to get off the pain meds to try to get my bowel > >> program to work better. Greg > >> > >>> What > >> is H.O.? > > >
