Maybe not, but have heard of people having alcohol blocks that relieved pain & spasms.
On 11/6/11, Danny Hearn <[email protected]> wrote: > I doubt that would help much, My spine and spinal cord got completely > severed > in my auto accident, but I have tons of pain. Dan H. > > > > > ________________________________ > From: Fragile <[email protected]> > To: quad-list <[email protected]> > Sent: Sun, November 6, 2011 12:29:32 PM > Subject: Re: [QUAD-L] pain in leg doctor results.( Greg) or others > interested. > > I recently asked my neurologist about severing my spinal cord to try to calm > the > Central Pain, but he thought it was too drastic. Lot of good a tiny bit of > feeling in my arms and legs is doing me. > > > On Sat, Nov 5, 2011 at 7:55 PM, Joan Anglin <[email protected]> wrote: > > I never thought that I would be glad that I was a C4 complete without any > movement whatsoever below my shoulders. However, after reading about all > the > physical problems that you guys that have movement and the ability to use a > push > chair, scratch your nose, feed yourself, etc and cetera have more problems > than > I do. >>I am beginning to believe that it is much better to wait patiently until >> that >>wasp walking over my arm flies away than try to hit it! Notwithstanding >> that >>there have been times that I know everyone that was watching me (at the >> Monterey >>bay aquarium when my wheelchair broke and I was sitting waiting for my >> family to >>return, one of the instances) probably thought I was insane because I was >>swinging my head around huffing and puffing for no apparent reason. Except >> >>there was a swarm of gnats flying in my face. J >>Sure I have pain, mostly internal and not necessarily reliable. Hunger, >>diarrhea pain, hemorrhoids-my nemesis, shoulder and neck and the ever >> present >>cold, hot tingling that is infuriating. But nothing compares to what some >> of >>you have to endure. My heart goes out to you and for those who believe as >> I, I >>pray for you. >>I had my first trip to emergency in several years, caught my little finger >> on a >>sharp object and ripped a long gash down to the bone. After 5 hours in >>emergency I know why I do not go there!! After being asked several times >> to >>lift my hand, turn my hand over, and please do not move they got ready to >> sew me >>up. I asked for the finger to be numbed- why asked the wise Dr.? What >>difference does it make, you won’t know. I tried to explain that my body >> will >>feel it but not my brain, and he shrugged his shoulders and said whatever. >> >>After I tried to jump out of my chair because of the needle he was using on >> my >>finger he asked me to please sit still. LOL when I asked him if he knew >> what >>autonomic dysreflexia was, he said of course, but then asked me how I knew >> that >>it hurt-DUH. >>He then proceeded to sew me up and left the nerve hanging out ½ inch. When >> the >>nurse who thought it was a dog hair pulled on it, I almost walked again one >> day >>after my 21st anniversary. She told a Dr. Who said it would just die and >> to >>leave it alone. We shall see what they say to my official letter of >> complaint. >>Hang in there, it’s much better than the alternative of not being around. >> J >>Joan >> >> >> >>From:Billy Lang [mailto:[email protected]] >>Sent: Saturday, November 05, 2011 10:50 AM >>To: 'Tod Santee'; [email protected] >>Cc: [email protected]; [email protected] >>Subject: RE: [QUAD-L] pain in leg doctor results.( Greg) or others >> interested. >> >>Hi Tod, Guys, >> >>I have been reading with interest your posts on pain, conditions and meds. >>Although our pain manifests itself similarly, I was wondering if anyone >> else is >>experiencing pain related to my condition? >>I Have Arachnoiditis caused by the number of spinal surgeries I've had in >> the >>past. I also have a fracture of a pars bone at L5 with disk herniations >>throughout my lumbar. It is inoperable. >> >>These conditions cause pain in lower back, and in my hip that radiates down >> my >>right leg. My meds: Fentanyl patches changed every 48 hours and OxyContin >> every >>three hours. I have been managing my pain (most times) augmented by self >>hypnosis. My pain management Dr. uses me to teach residents by testing them >> and >>asking, "Do you think he takes too much medicine?". Before they answer he >>quickly says, "he is taking the equivalent of 146 Percocet a day without >> the >>Tylenol." The answer is that he ramped me up over a year’s time to this >> level. >>He finishes by telling them if he took 50 mg of fentanyl patch and put it >> on >>them they would be dead in an hour. Cute story. >> >>Anyway, I too suffer bowel problems caused by the opiates. We have run the >> gamut >>of solutions, the latest being 2 cups of Senna tea, afternoon and evening >> the >>day before the bowel program. It seems to be working well, real loose but >> at >>least it's out. Never thought my quality of life would be measured by >> whether I >>poop or not. Today's a good day. >> >>I am 23 years post and have an appointment to get both my shoulders shot >> next >>week. Then it's back to physical therapy twice a week to attempt to >> strengthen >>what muscles I have left in both shoulders. Weird, can't understand why the >> >>opiates I'm taking don't take care of the shoulder pain. I know the >> shoulders >>are both bone on bone with tendon damage/loss after using them without >> triceps >>all these years. We all have bone loss from the chairs, meds etc., even our >> >>teeth are effected. >> >> >>Thanks for listening, I'll be watching the list a little more often. Stay >>strong. >> >>Don't let what you cannot do interfere with what you can do! >> >>Billy >> >> >> >>From:Tod Santee [mailto:[email protected]] >>Sent: Sunday, October 30, 2011 10:31 PM >>To: [email protected] >>Cc: [email protected]; [email protected] >>Subject: Re: [QUAD-L] pain in leg doctor results.( Greg) or others >> interested. >> >>Hi Dana, Greg, Dan and the Rest 'O the Gang! >> >>Dana, I'll be starting with Forteo in a couple months. I was wondering how >> long >>you've used it and if you've noticed any changes (as in anything other >> than the >>bone loss/gain/strengthening) such as how well (or not) any other meds >> might >>work? Bowel and/or bladder changes? Stuff like that. >> >>I was taking Fosamax for a few years but then an endocrinologist checked me >> out >>and saw that after all my time in bed after an accident a couple years ago >> I was >>still "dumping" a lot of calcium. I was losing more through urine than I >> could >>take in... he said he'd never seen a loss as high as mine (and he's been in >> the >>business a Lonn..ngg time!). He tried me on one 3-month IV dose of Boniva >>(instead of the once-a-month pills) and the IV seemed to help. So he >> switched >>me to Reclast. After 2 yrs of Reclast I'm no longer losing... but still >> not >>gaining. So now we're switching to Forteo hoping to begin >>rebuilding/strengthening some bone. I just had a DEXA Scan that showed a >> little >>improvement. >> >>My biggest worry now is an increase in pain that might come if Forteo can >>accelerate the development of bone tissue. I have a hip that was pretty >> messed >>up from ischial surgeries followed by a more recent, nasty bout with MRSA >>*in* (and through) my hip bone. My hip always hurts like hell and my back >>--which ended up fragile enough to crack after 9-months bed time, needing a >> >>"sacroplasty" injection of cement-- contributes to burning, shooting, or an >> >>"over-stretching-feeling" type back and leg pain. >> >>I guess I'm also wondering if you (or maybe Greg or others) have heard of >>increased increased incidences of HO when using Forteo. I know it's fairly >> knew >>but I'll never be able to read everything out there about it! HO is ONE >> problem >>I haven't had and hope to "All-That's-Good-and-Decent" that I never have >> to. I >>doubt many docs would think about upping my pain meds. I'm already on >> stuff >>that makes Oxy or Vicodin feel like an aspirin for an amputation! >> >> >>Thanks for any info or thoughts! Sure wish I was able to get "on-list" >> more >>often but I've been super busy (even after leaving work)! >> >>Best wishes to Everyone, mi Amigos! >>--Tod Santee >> >>On Thu, Oct 27, 2011 at 2:37 PM, <[email protected]> wrote: >>Hi Greg, >> >>I guess HO is another one of those quadriplegic conditions we have to check >> > for. >>I am on forteo injections daily and re-clasp I just got the weeks ago. My >> doctor >>wants to do both treatments because my bone density deteriorated. The >> hospital >>told me that they had positive results in bone density with reclapce that >> is >>done yearly. >>Dana. >>In a message dated 10/24/2011 4:01:23 P.M. Central Daylight Time, >>[email protected] writes: >>Error! Filename not specified.Error! Filename not specified.I took >> Oxycontin for >>awhile, but insurance changed and now I take MS-Contin. >>>They are the only thing that helped. Though they did not help for my >>> common quad >>>stuff pain, tingling and burning, etc. >>>Osteoporosis is more of a bone loss I think. H.O. is more of an excess >>> bone >>>growth. >>>But I do have both. I have osteo in some areas, but H.O. on my hip. >>>I take meds for the osteo now, some pill once a week with loots of water. >>>No doc mentioned a connection. >>>Greg >>> >>>> Hi Greg, >>>> >>>> So sorry to hear about your pain problems associated with HO. Thank >>>> you for describing what that term means, as I had never heard of >>>> this before. What pain medication works best for you? We have often >>>> talked about pain medication on the list. That is such a >>>> unpredictable condition especially if it can inhibit joint >>>> movement. Is this anything like osteoporosis? God bless you and I >>>> will be praying for you. Dana >>>> C4-5 complete, 37 years post, 58, I was a passenger in a motor >>>> vehicle accident at the age of 20 >>>> In a message dated 10/23/2011 3:16:27 P.M. Central Daylight Time, >>> >>>> [email protected] writes: >>>> >>>>> The >>>>> term heterotopic ossification (HO) describes bone formation at an >>>>> abnormal anatomical site, usually in soft tissue. Cause is often >>>>> an injury, even >>>>> just a hard bruise. A large precent of SCI's have some form of >>>>> (HO). It can >>>>> grow big enough to prevent joint movement. Because it's growing >>>>> in the muscle, it is very painful. And because we can't feel it, >>>>> the pain can show up in different areas. Mine is an egg size lump >>>>> on my hip. My thigh feels >>>>> like it's being crushed, it even shows up in my dreams. I often >>>>> dream my leg is on fire or my leg is crushed in a car door. The >>>>> pain caused such bad >>>>> spasms, I ended up in the ER twice in 2 days before they found >>>>> the cause. >>>>> My legs and abdomen were cramping so hard I was throwing up. And >>>>> I thought my heart was spasming and it was harder to breath. Once >>>>> it's under >>>>> control, stopped growing. Pain meds can help a lot, but they >>>>> cause all kinds of bowel troubles. I've tried just about >>>>> everything to get off the pain meds to try to get my bowel >>>>> program to work better. Greg >>>>> >>>>>> What >>>>> is H.O.? >> >> >
