I forgot to add that you can wear a leg bag if you desire.
Dana
In a message dated 3/11/2012 4:40:35 P.M. Central Daylight Time,
[email protected] writes:
I took a regular bed bag onto the end of my ilio conduit bag. I drank a
lot and the ilio conduit bag gets full quite often. My mom also has one, but
she is able bodied, so she can empty herself. She does wear a bed bag at
night. It is easier than the indwelling catheter
I found out this year I had kidney stones and I had three Lithotripsy
treatments and it got rid of one stone but there are still several, but not
impairing urine passage.
I do not have a bladder, because of bladder cancer in 86.
My kidney doctor put me on:
FARR PROBIOTICS Order number: 1000 25900
877-284-3976 M-F9-4 PM PST 49.99 each
I take two times a day and I have not had any
urinary tract infection since I started taking them.
They are sent out automatically every 2 months,
two bottles in charge to your credit card or debit
card.
So I highly endorse them. They are probiotics called Prourol,
especially for preventing UTIs.
_http://www.farrlabs.com/index.php/featured/prourolauto.html_
(http://www.farrlabs.com/index.php/featured/prourolauto.html)
In a message dated 3/11/2012 1:02:09 P.M. Central Daylight Time,
[email protected] writes:
How do you deal with the bag? Do you have to empty it often?
Dan
At 01:25 PM 3/11/2012 -0400, [email protected] said something that elicited
my response:
>
>When I was going through bladder cancer, it might be the same thing they
offered me, but I cannot Myself so they decided an ilio conduit would be
better as it requires no regular cathetering. I remember he referred to it as
a artificial bladder, that was in 86. I don't mind the ilio conduit, it
seems easier than having to be catheterized.
>
>It was considered rare for a woman to have bladder cancer in 86. They had
not had very many patients that were female with bladder cancer. Craig did
a study about those and later called me.
>
>Dana
>
>
>In a message dated 3/10/2012 8:48:19 P.M. Central Daylight Time,
[email protected] writes:
>>I asked about this and they assure me it is not the same. I think with
the conduit one still has to cath themselves. I was also told by some
people it could be referred to as a Florida pouch, but they tell me that is
not
the same procedure. They kept referring to it as a chimney.
>>
>>
>>On Sun, Feb 26, 2012 at 12:57 PM, Quadius
<<mailto:[email protected]>[email protected]> wrote:
>>>They tell me that is the common name, although some people tell me the
ileo conduit is another name, but I'm not sure.
>>>
>>>On Fri, Feb 24, 2012 at 12:01 PM,
<<mailto:[email protected]>[email protected]> wrote:
>>>>Quadius, does this procedure have any common names?
>>>>Best Wishes
>>>>
>>>>In a message dated 2/21/2012 5:51:34 P.M. Central Standard Time, <mai
lto:[email protected]>[email protected] writes:
>>>>>I have been experiencing a multitude of problems over the last year
and finally I had a cystoscopy done in August which showed there were no
stones or any other obstructions. I had been experiencing a lot of pain from
the catheter rubbing against the back of the bladder wall.
>>>>>
>>>>>I have managed to tape my suprapubic (SP) against a stat lock device
that I'm using on my lower abdomen. This is working well with the pain
most of the time, but I am still having problems with my catheter not draining
properly at times. Repositioning the bag so that the urine has to travel
up seems to help about 50% of the time, but there also seems to be those
times when we have to flush with some saline in order to get it draining
again.
>>>>>
>>>>>When I explain this to be urologist, who works on a multitude of
quadriplegics here in Tampa and as been my urologist for the last 10 years)
she
informed me that I would be an ideal candidate for the ileovesicostomy.
She told me that my catheter had atrophied so significantly that it was
probably one of the only options left up to me. I have been procrastinating
and thought I had everything resolved, but I have been experiencing a lot of
problems lately. I think I'm just delaying the inevitable.
>>>>>
>>>>>Has anyone on this list have the procedure and if so would they mind
telling me their experiences?
>>>>>
>>>>>I am searching through forums right now and trying to gather as much
information as I can. I'm planning on scheduling another meeting with my
urologist in order to allay my fears. I haven't had surgery since I have
been paralyzed and I'm terribly frightened of general anesthetic. I don't
want to be put back on a ventilator after spending four months of what I now
think were the worst months of my life fighting to get off the ventilator.
>>>>>
>>>>>Anyway, if you can help out I really appreciated.
>>>>>Quadius
>>>>>PS please excuse any errors. Among the backup to my backup
microphone and it has some static bursts into it right now. I really need to
get my
computer and microphones within working order again.
>
