Yes, many quads have Syringomyelia---i was diagnossed in about 1999 but doctors here in St.louis said they will not touch it unless I lose the function that I currently have. They told Ron-- another missouri quad the same thing. ( it is very dangerous and risky and sometimes the surgury does not help ) Dan H.
________________________________ From: Bobbie Humphreys <[email protected]> To: Lda Nscia <[email protected]> Cc: "[email protected]" <[email protected]> Sent: Mon, March 12, 2012 2:36:04 PM Subject: Re: [QUAD-L] Syringomyelia ( cyst on spine ) I was diagnosed with a syrinx in 1995, never had surgery. Why dose your Doctor feel the need? Have you lost some function and or feeling? Bobbie C-4,5,6,7 1973 Sent from my iPad On Mar 12, 2012, at 2:55 PM, Lda Nscia <[email protected]> wrote: I have recently been diagnosed with Syringomylelia ( cyst or syrinx on spine ) and am awaiting surgery at Craig Hospital in Denver. > > > >I would like to hear from others who have had > >this surgery to get a patients perspective. > > >Glenn > > >Louisiana Disability Alliance, NSCIA >P.O. Box 86632, Baton Rouge, LA 70817 >Ph: 225-436-4519 [email protected] > > > >
