I didn't think about the size...I use a 24FR with a 10ml balloon. Danny E, 
could you tell me more about the silver impregnated catheter? 

On Jul 26, 2012, at 7:27 PM, "Daniel Espinoza" <[email protected]> wrote:

> If I get AD symptoms when the catheter after the catheter change it usually 
> goes away fairly quick
> How much do you fill the balloon? I use 4ml, it sounds like it may be getting 
> overfilled or some sort of lasting pain is going on.
>  
> Danny
>  
> From: Mandy T <[email protected]>
> To: Don Price <[email protected]>; Ben Mattlin <[email protected]>
> Cc: quadlist <[email protected]>
> Sent: Thu, July 26, 2012 6:28:28 PM
> Subject: Re: [QUAD-L] suprapubic
> 
> I've only had mine for 5 1/2 months (I was injured last Oct) so I don't have 
> a long-term look at the suprapub. My instructions for maintenance were to 
> clean the stoma morning and night with Dial soap, clean the bags (I use a leg 
> bag during the day) with a bleach solution, and change the catheter once a 
> month. The stoma has not yet healed, leading me to wonder if it ever does? I 
> like your comment about trading between vinegar and bleach, Don.
>  
> The main problem for me started when a CNA disconnected my leg bag in the 
> shower, allowing bacteria in. I had a series of infections after that and I'm 
> still not quite recovered. Beware of idiocy. :/
>  
> Now for the brutally honest part...during the procedure my BP went up to 
> 210/110, so make sure your urologist understands AD and has ways to lower 
> your BP immediately available (nitro paste, pain meds, etc). It may have just 
> been the way they performed the procedure or the fact that I'm so susceptible 
> to AD. Has anyone else had this experience?
>  
> I have another question- does anyone here have bad AD symptoms when the 
> catheter is being changed and up to a day after it was changed? If so, how do 
> you prepare for/treat the problem?
>  
> Mandy, C5-C7 quad
> From: Don Price <[email protected]>
> To: Ben Mattlin <[email protected]> 
> Cc: quadlist <[email protected]> 
> Sent: Thursday, July 26, 2012 4:24 PM
> Subject: Re: [QUAD-L] suprapubic
>  
> To clarify--he was talking about rinsing the legbag out with a bleach 
> solution, NOT your suprapubic.
>  
> Btw, if you're able to you should rinse legbags or nightbags out by 
> alternating between a bleach solution one night and a vinegar solution the 
> next night. Kills different bacteria and keeps them almost odor-free.
>  
> From: Ben Mattlin <[email protected]>
> To: [email protected] 
> Sent: Thursday, July 26, 2012 3:04 PM
> Subject: RE: [QUAD-L] suprapubic
> 
> Thanks, Daniel - but I'm a little confused.  My urologist said I could just
> keep it capped and empty it into a bottle or urinal every 4-6 hours.  He
> said a leg bag was optional for longer durations.  Also said it would have
> to be changed monthly, either at his office or by a home nurse.  He didn't
> say anything about rinsing with diluted bleach or anything.  I thought he
> was making it sound too simple!
> 
> ______________________________
> Ben Mattlin
> http://www.benmattlin.com/
> http://www.miracleboygrowsup.com/
> 
> -----Original Message-----
> From: Daniel Espinoza [mailto:[email protected]] 
> Sent: Thursday, July 26, 2012 1:26 PM
> To: 'Ben Mattlin'; [email protected]
> Subject: RE: [QUAD-L] suprapubic
> 
> I've had mostly good experiences.... I rarely get UTI's now. I switch from
> my night bag to leg bag when I get in my char and just monitor my leg bag as
> my bladder is about the size of a walnut now... I use silver impregnated
> catheters to help prevent uti's, catheter gets changed every two weeks.
> Maintenance is as follows: 
> Leg bag: rinse with diluted bleach after every time you use the leg bag.
> Night bag:  rinse with diluted bleach after you drain it and your changed to
> the leg bag
> 
> -----Original Message-----
> From: Ben Mattlin [mailto:[email protected]]
> Sent: Thursday, July 26, 2012 12:37 PM
> To: [email protected]
> Subject: [QUAD-L] suprapubic
> 
> Anybody had good or bad experiences with a suprapubic?  I'm wondering about
> the initial installation operation as well as daily and monthly maintenance.
> Do you use a leg bag or just plug it and empty it every 4 to 6 hours?  What
> are the "side effects" the doctors don't tell you about?  Brutal honesty
> appreciated.  Best, Ben
> 
> ______________________________
> Ben Mattlin
> www.BenMattlin.com
> www.MiracleBoyGrowsUp.com
> 
> 
> 
> 
> 
>  

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