THAT is THE hardest, the absolutely hardest par of being a quad. I've screamed, cried and tossed many things because I can't pick up something or hold onto it! Bobbie
Sent from my iPad On Aug 24, 2012, at 4:04 PM, "John S." <[email protected]> wrote: > $#@# Walking, I WANNA MOVE MY HANDS ! > john > From: Dave Krehbiel <[email protected]> > To: [email protected] > Sent: Friday, August 24, 2012 9:02 AM > Subject: RE: [QUAD-L] Top Nine Myths about People with Paralysis > > Thanks, this is a great list. > > I would add one other misconception - that we need their help to cross the > street. When I'm trying to cross a road in my wheelchair, some people react > quite unpredictably. For example, people driving on a 4 Lane road will often > try to be polite by stopping and blocking one of the Lanes, probably thinking > that I want to rush across the street through 3 other lanes of traffic. > Often, well-meaning people will stop in the middle of an intersection, > causing traffic back-ups. I am much more interested in crossing the road > safely rather than crossing it quickly. I would prefer that people act more > predictably. I wish they would simply obey the speed limit, use their turn > signals, and put down their cell phones. I'm happy to wait a minute or two > for five until traffic clears out. > > Dave Krehbiel > > From: Don Price [mailto:[email protected]] > Sent: Thursday, August 23, 2012 5:31 PM > To: quadlist > Subject: [QUAD-L] Top Nine Myths about People with Paralysis > > http://www.spinalcordinjury-paralysis.org/dailydose/2012/08/06/top-9-myths-people-believe-about-individuals-livin > > Here are the results to our question along with some of the commentary from > our community: > > What is the # 1 myth you think the general public believes about individuals > living with paralysis? > > 1. Not interested or can't have sex. (19.0%) > Yes, somethings still work. - Chill > > 2. Life must be so sad. (18.0%) > A lot of peple think that we are not suppose to be intelligent, productive > people who enjoy living a full life doing those very same things that people > who are not paralyzed like to do. We work, fall in love, get married and > raise a family, we have a social life, > yes we do enjoy life, liberty and the pursuit of happiness. - Marva > > 3. Number one wish is to walk. (14.8%) > Every opportunity I get I let people know that paralysis is so much more than > not walking. Yes, I tell them I can't poop or pee on my own...to complete > strangers but they need to know!!! - Wheelchair Mama > > 4. Mind must not work either. (13.0%) > People seem to automatically associate impaired physical function with a > mental deficiency. I often meet their comments with: "I broke my spine, not > my mind." - Catherine > > 5. Must not have any pain. (9.9%) > People think, well your paralyzed that means you can't feel anything how > could you possibly have pain? (My husband) lives with indescribable nerve > pain, the worst in his hands and in his feet and butt. - Susan > > 6. Unable to have a successful career/family/life. (9.2%) > So many people want to blow sunshine up our a**es, or, want to believe that > we are bitter if we don't have hope of ever walking again. But in reality, > many of us have come to terms with our respective situations and have chosen > to make the best of it. - CJohn > > 7. Only medical problem is the paralysis. (8.8%) > There is significant neuropathic pain, bowel and bladder control, fighting > with insurance companies, reduced energy, changed relationships, loss of > independence, lack of access to our homes an no financial help for needed > accessibility adaptions or exercise equipment, increased infections > (especially UTIs)' and lack of appropriate sensation that allows for some > spectacular accidents (and AD). - Shel > > 8. Have all expenses paid by the government. (3.9%) > "So, how do you get by? Social Security?" Yeah, because we, as individuals, > are part of a disadvantaged minority group, we all must either be on the > government dole, or looking for a handout. And because the former must be > true, we all must be liberals. - CJohn > > 9. Always want help. (3.5%) > No matter what an #### someone is, I should alway's be nice and gratefully > for any unwanted help I get! - Ben > > All of the above are myths, some are just more pervasive. > >
