I will never forget being in the hospital and having OT come in and work on putting a cassette tape into a boom box. She probably wished she hadn't come in that day. Radio ended up on floor in pieces. Have to agree on the hands issue. After a few years, was lucky enough to get back my index finger and thumb on right hand only, which has been a blessing.
Todd On Aug 24, 2012, at 4:45 PM, Bobbie Humphreys <[email protected]> wrote: > THAT is THE hardest, the absolutely hardest par of being a quad. I've > screamed, cried and tossed many things because I can't pick up something or > hold onto it! > Bobbie > > Sent from my iPad > > On Aug 24, 2012, at 4:04 PM, "John S." <[email protected]> wrote: > >> $#@# Walking, I WANNA MOVE MY HANDS ! >> john >> From: Dave Krehbiel <[email protected]> >> To: [email protected] >> Sent: Friday, August 24, 2012 9:02 AM >> Subject: RE: [QUAD-L] Top Nine Myths about People with Paralysis >> >> Thanks, this is a great list. >> >> I would add one other misconception - that we need their help to cross the >> street. When I'm trying to cross a road in my wheelchair, some people react >> quite unpredictably. For example, people driving on a 4 Lane road will often >> try to be polite by stopping and blocking one of the Lanes, probably >> thinking that I want to rush across the street through 3 other lanes of >> traffic. Often, well-meaning people will stop in the middle of an >> intersection, causing traffic back-ups. I am much more interested in >> crossing the road safely rather than crossing it quickly. I would prefer >> that people act more predictably. I wish they would simply obey the speed >> limit, use their turn signals, and put down their cell phones. I'm happy to >> wait a minute or two for five until traffic clears out. >> >> Dave Krehbiel >> >> From: Don Price [mailto:[email protected]] >> Sent: Thursday, August 23, 2012 5:31 PM >> To: quadlist >> Subject: [QUAD-L] Top Nine Myths about People with Paralysis >> >> http://www.spinalcordinjury-paralysis.org/dailydose/2012/08/06/top-9-myths-people-believe-about-individuals-livin >> >> Here are the results to our question along with some of the commentary from >> our community: >> >> What is the # 1 myth you think the general public believes about individuals >> living with paralysis? >> >> 1. Not interested or can't have sex. (19.0%) >> Yes, somethings still work. - Chill >> >> 2. Life must be so sad. (18.0%) >> A lot of peple think that we are not suppose to be intelligent, productive >> people who enjoy living a full life doing those very same things that people >> who are not paralyzed like to do. We work, fall in love, get married and >> raise a family, we have a social life, >> yes we do enjoy life, liberty and the pursuit of happiness. - Marva >> >> 3. Number one wish is to walk. (14.8%) >> Every opportunity I get I let people know that paralysis is so much more >> than not walking. Yes, I tell them I can't poop or pee on my own...to >> complete strangers but they need to know!!! - Wheelchair Mama >> >> 4. Mind must not work either. (13.0%) >> People seem to automatically associate impaired physical function with a >> mental deficiency. I often meet their comments with: "I broke my spine, not >> my mind." - Catherine >> >> 5. Must not have any pain. (9.9%) >> People think, well your paralyzed that means you can't feel anything how >> could you possibly have pain? (My husband) lives with indescribable nerve >> pain, the worst in his hands and in his feet and butt. - Susan >> >> 6. Unable to have a successful career/family/life. (9.2%) >> So many people want to blow sunshine up our a**es, or, want to believe that >> we are bitter if we don't have hope of ever walking again. But in reality, >> many of us have come to terms with our respective situations and have chosen >> to make the best of it. - CJohn >> >> 7. Only medical problem is the paralysis. (8.8%) >> There is significant neuropathic pain, bowel and bladder control, fighting >> with insurance companies, reduced energy, changed relationships, loss of >> independence, lack of access to our homes an no financial help for needed >> accessibility adaptions or exercise equipment, increased infections >> (especially UTIs)' and lack of appropriate sensation that allows for some >> spectacular accidents (and AD). - Shel >> >> 8. Have all expenses paid by the government. (3.9%) >> "So, how do you get by? Social Security?" Yeah, because we, as individuals, >> are part of a disadvantaged minority group, we all must either be on the >> government dole, or looking for a handout. And because the former must be >> true, we all must be liberals. - CJohn >> >> 9. Always want help. (3.5%) >> No matter what an #### someone is, I should alway's be nice and gratefully >> for any unwanted help I get! - Ben >> >> All of the above are myths, some are just more pervasive. >> >>
