Damn, Bobbie, I'm pretty much speechless. I've had a sore about 3x4 in on my butt for over 6 yrs. It has hardly any depth, but it never changes - no better, no worse. I do not have your self-discipline. I have spent no extensive time in bed which, obviously, I should have. I use a Roho cushion and sit up 12-15 hrs. a day. We dress it morning and night. I figure I'll have it till I leave this world. Maybe I'm a nut, but I just cannot lie in bed day and night. The pain is ridiculous. I know I didn't help a bit, but know I certainly empathize with your situation. It is a bowl of crap with a crap soda and dish of crap on the side. Another shitty quandry from the wonderful world of quadom. God bless and good luck.
Sent from my iPad Begin forwarded message: > Resent-From: [email protected] > From: [email protected] > Date: April 3, 2013, 3:26:28 PM EDT > To: [email protected] > Subject: [QUAD-L] Help, I don't know what to do anymore? > > > Everybody, > Back in December I was getting up just once a week, then the day > after Christmas I stayed in bed through Febuary. In March I was starting > getting up twice a week for 3 weeks ...… then BAMM -- the rt was pulled out > from under me again and I've been in bed ever since. It's always the same > freaking thing, just a superficial wound, enough to keep me in bed. > I'm starting to go wacko, trying to keep myself busy. Now that the weather, > here in New Jersey, is trying to get warmer (down to 25 last night and > tonight) I want to feel like I might be able to PLAN something. > What do you guys do at times like these? Bobbie > >
