Yes. Ended up having an urostomy procedure done. I still have some pain, but I don't have the bouts with AD like I used to. My recovery was pretty long and difficult, but all in all for me it was the only option other than continuing on with dysreflexia and other problems. Q
Sent from my iPad > On Feb 7, 2014, at 9:43 AM, Fragile <[email protected]> wrote: > > Did you find a solution for bladder atrophy and the bladder wrapping around > the catheter? > > >> On Thu, Feb 6, 2014 at 5:34 PM, Quadius <[email protected]> wrote: >> I had some problems with pain and AD whenever I've had my suprapubic. I >> found that a lot of the problems were occurring because the catheter was >> rubbing against the back of the bladder. Have you tried tethering the >> catheter to your belly so that it doesn't slide into the bladder too far? >> You might also have a problem with bladder atrophy. Mine was pretty severe >> and it would happen at least once or twice a day that the catheter would >> stop draining because the bladder had wrapped around the catheter. >> Q >> >> >> Sent from my iPad >> >>> On Feb 5, 2014, at 9:34 AM, Fragile <[email protected]> wrote: >>> >>> I've been having trouble with AD for the past 14 months after having a SP >>> cath put in. The first few days after the catheter is changed, AD occurs >>> every 10 minutes or so. Transferring in and out of my chair also sets it >>> off. When getting dressed, any contact to the groin area also sets it off. >>> The only thing that gets rid of it is to lay on my side. Blood pressure >>> gets up to 180/120. Local Doctors are clueless. The supposed "good" >>> doctors are 3 hours away, I'm afraid of trying to travel that far. >>> >>> >>>> On Tue, Feb 4, 2014 at 7:59 PM, Gmail <[email protected]> wrote: >>>> I had a very bad AD "episode" back in 1986 before anybody knew what it was >>>> and what he signs are. >>>> I was hospitalized for severe headache's, they ended up putting an elderly >>>> woman who was almost complexly deaf in my room. Every person who came to >>>> communicate with her had to SHOUT! >>>> It ended up having a full blown stroke on my right side. I couldn't speak >>>> or move my left arm. Then I threw-up bile which was a clear indicator that >>>> my gallbladder was very bad. After they removed it I got my speech back >>>> and could move my left arm again ... I am SO LUCKY! >>>> As a result of the stroke I have some long-term memory loss. >>>> Bobbie >>>> >>>> Smile Everyday >
