Hi Ron, Bummer about the insurance. I wonder if there is some work around??? The other option would be to see if the Dr. Barth Green at the University of Miami (Miami Project) accepts your insurance. The irony is--at the last time I checked the hospital accepted Medicare and/or Medicaid.
I've spoken to several people that have had the syrinx detethering done. They said it isn't fun--to do it right and safely, following surgery you have to be flat on your back for days. It has something to do with stitching up the dura on the spinal cord--a friend that had the procedure done said Dr. Falci said it is very fragile and likens it to trying to stitch two pieces of wet toilet paper together--hence needing to be motionless while the dura heals together. At least that is what I heard. Wishing you the best, and hope you can find a center and or physician that will work with your insurance. Bob V On Dec 17, 2014, at 11:01 AM, RONALD L PRACHT wrote: > I need Falcis help. I sent him my mri and talked to Charlotte on the phone. > They wouldn't take united healthcare insurance. told me it would be 50,000 to > start the procedure with an approximate 19 day stay > > Ron > > > On Wednesday, December 17, 2014 11:52 AM, Bob Vogel <[email protected]> wrote: > > > Hi Danny, > > I'm sorry to hear about the sudden dramatic increase of dysreflexia bouts as > well as increase in spasms. From where I sit, > you and your Dr.s are right on track trying to ummm track down the cause. > Dysreflexia, especially increases that pop up out of nowhere, is an issue > that I have researched and written about--it is also something we at New > Mobility have experienced through our journalists and > people we have written profiles of. > > In terms of syrinx, we have written several articles about this. In my > research, and if it was me there are two Dr.s I would > contact--these are the top syrinx docs, and a syrinx is very complex, you > want the best of the best to advise you, and if > need be, to do the treatment. The doctors are, Dr. Barth Green at the > University of Miami (Miami project) or Dr. Scott Falci > at Craig hospital in Denver. I have spoken with Dr. Falci several times. In > my experience he and his nurse Charolette Indeck > are the best. You can phone or email Charolette for information and she or > Dr. Falci usually get back to you in 48 hours. > Their contact info is: (303)761-5281 or email: [email protected] > Dr. Falci has treated (surgically) over 1000 people > with syrinx. > > Here are two articles New Mobility has done on syrinx, I wrote the first one > and Richard Holicky wrote the 2nd one. > > Para/Medic: Syrinx and Pain > http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/ > > Untethering the Invisible Knot Richard Holicky > http://www.newmobility.com/2009/03/untethering-the-invisible-knot/ > Wishing you a quick resolution to this! > Sincerely, > Bob Vogel > Senior Correspondent/New Mobility > > On Dec 17, 2014, at 8:58 AM, Danny Hearn wrote: > >> Hi all...I'm still having dysreflexia on and off, been about 3-4 weeks total >> now, get bad spasms-especially at night when in bed, I do better during day >> when up and taking pain meds. In 17 years as a quad I have only had problems >> similar to this when I had serious bladder infections. 1st I went to family >> doc and he did some blood work but found nothing, Next we sent A Urine >> sample to my Urologist and he found 2 bacteria's and put me on 7 days of >> cipro--just in case a uti or infection could be the cause, I will finish the >> cipro tomorrow but things are not getting better so It must be something >> else...I have a syrinx in my spine, don't know if that can be the cause and >> not sure I can even do an mri now due to spasms when I lay down, sure hope >> We can find the cause or I'm not sure what will happen...Oh well, I'll stop >> for now, If anyone has an Idea on this, please reply...Thanks Beforehand, >> hope your all doing well. Dan H*** > > >
