My problem is I can’t push any buttons, no movement from the shoulders down. My Sicare is so old that it no longer connects reliably with any X10 outlets, so I am trying to get somebody to figure out my problem with the unit.
Then I will be able to turn the fan on or off again. I hate it when things that make my life easier start getting attitudes! JJoan From: shirley bell [mailto:[email protected]] Sent: Saturday, April 25, 2015 2:53 PM To: Joan Anglin Cc: [email protected] Subject: Re: [QUAD-L] Hey Don Joan, I NEED my ceiling fan when I get to hot in middle of night, saves me! You can get them with remotes so you can turn off and on when needed,.its so hard for us. I Best, Shirley Bell www.ShirleyBellDesigns.com ----- Original Message ----- From: Joan Anglin <mailto:[email protected]> To: [email protected] Sent: Saturday, April 25, 2015 4:51 PM Subject: RE: [QUAD-L] Hey Don I can’t move myself at all, unless I spasm which often sends me into an uncomfortable position. It takes a good 10 to 15 minutes a night to get me positioned so that I think I’ll be comfortable all night long. I sleep on a memory foam mattress with the head and a foot slightly elevated. Because I sleep on my back my hands and arms have always been a problem because they will get wedged against my legs during the night. And then they’d would push up my shoulders and in the morning I would be a very sore. It looks ridiculous, but we found a way to keep my shoulders relaxed. We just take the bottom of my nightshirt and fold it back over my arms and pin it securely with my hand side by side on my stomach. It has also lessened the spasms which I think were caused by my fingers dating into my legs. Amazing what we have to go through to just get a night’s sleep! I have my cell phone plugged in on the table which has my Sicare turn on so I can watch TV. The phone will wake up to a voice command and I can call somebody to come over if I absolutely need to. Thank goodness it doesn’t happen very often. The worst part is knowing I’m going to get too warm a couple of hours after going to bed and adjusting everything so that I am warm enough to go to sleep but not too warm so that I wake up hot and can’t do anything about it!! I really need to design a pulley system to raise and lower my blanket LOL. I can reach the water tube without moving so I don’t get too thirsty, but the alternating too hot and too cold is very frustrating. Anybody have any ideas? I’m open for suggestions. I guess I could blame my temperature changes on living in Reno, today the high is 46°with snow this morning, and Wednesday is suppose to be a 82°record! Maybe I’ve lived here too long? Have a great day everyone. Joan From: Don Smith [mailto:[email protected]] Sent: Saturday, April 25, 2015 11:42 AM To: greg Cc: [email protected] Subject: Re: [QUAD-L] Hey Don I'm able to move myself around some, I sleep on a low loss air mattress and I have a phone by my bed incase of any issues I can't deal with. We change my foley every two weeks which help cut down on problems. As with most of us, I have had to call pca or a friend in the middle of the night though. On Sat, Apr 25, 2015 at 9:02 AM, greg <[email protected]> wrote: I could not do it. I go most nights with no trouble, but now and then I start sweating really bad at night. I either need moved around a bit, or my cath is kinked somewhere. I would probably lay there all night worrying that I would start sweating any minute. Greg > Good for you, Don. I would not have the onions to live by myself. I > can imagine my night as one long panic attack. It is almost that > way now. You are more man than I am my friend.
