Hi Bobbie and all, There has already been much excellent information shard about about Syringomelia (Syrinx) on this site including (I forgot the person that mentioned Dr. Scott Falci Craig hospital (as well as Dr. Barth Green at the Miami Project) as being the top people in the field in terms of Syrinx and SCI. Dr. Falci and Charolette (sp?)at Craig Neurosurgery are very good at answering questions and providing information about Syrinx, based on symptoms etc. over the phone—Dr. Falci has performed well over 1000 Syrinx surgeries and helps you figure out, via phone based on symptoms, statistics, and his experience (he has operated on well over people with Syrinx’s) when one needs treatment (surgery) vs. when to leave it alone.
Here is a link to an article I wrote for New Mobility magazine about SCI and Syrinx, hope the information is helpful. http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/ <http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/> Bob Vogel > On Jan 23, 2017, at 6:26 PM, Bobbie Humphreys <[email protected]> > wrote: > > It is well over 50% of spinal cord injury who develop a syrinx, some with in > a month of injury some many years and then others ... never. > Bobbie > > "You must fail in order to succeed" > > On Jan 22, 2017, at 8:02 PM, Lori Michaelson <[email protected] > <mailto:[email protected]>> wrote: > >> Yes, I have known for years that 3 to 4% of persons with traumatic spinal >> cord injuries get posttraumatic syndrome syringomyelia and I fell into that >> 3% with severe symptoms whereby I had to quit work. >> >> Those "others" are able-bodied people who developed a form of syringomyelia >> called Chiari Malformation. Even though vastly different they have the same >> type of "syrinx." >> >> It is similar in that a Chiari Malformation it is an abnormal collection of >> CSF [cerebral spinal fluid] in the spinal cord (syrinx) and is also >> confirmed by cine MRI and causes severe or worsening symptoms. >> >> ~Lori >> >> On Fri, Jan 20, 2017 at 10:45 PM, Aaron Mann <[email protected] >> <mailto:[email protected]>> wrote: >> More info: "Approximately 3-4% of persons with traumatic SCI develop >> clinically symptomatic PTS. A larger percentage of persons have clinically >> silent syrinx cavities diagnosed by imaging techniques." >> >> http://emedicine.medscape.com/article/322348-overview >> <http://emedicine.medscape.com/article/322348-overview> >> >> >> >> >> -- >> "Petting, scratching and cuddling a dog could be soothing to the mind and >> heart and deep meditation and almost as good for the soul as prayer." ~Dean >> Koontz
