Thanks 🙏 
Bobbie 

"You must fail in order to succeed"

> On Jan 24, 2017, at 12:50 AM, Robert Vogel <[email protected]> wrote:
> 
> Hi Bobbie and all,
> 
> There has already been much excellent information shard about about 
> Syringomelia (Syrinx) on this site including (I forgot  the person that 
> mentioned Dr. Scott Falci Craig hospital (as well as Dr. Barth Green at the 
> Miami Project) as being the top people
> in the field in terms of Syrinx and SCI.  Dr. Falci and Charolette (sp?)at 
> Craig Neurosurgery are very good at answering questions and providing 
> information about Syrinx, based on symptoms etc. over the phone—Dr. Falci has 
> performed well over 1000 Syrinx surgeries and helps you figure out, via phone 
> based on symptoms, statistics, and his experience (he has operated on well 
> over people with Syrinx’s) when one needs treatment (surgery) vs. when to 
> leave it alone.
> 
> Here is a link to an article I wrote for New Mobility magazine about SCI and 
> Syrinx, hope the information is helpful.
> http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/
> 
> Bob Vogel
> 
>> On Jan 23, 2017, at 6:26 PM, Bobbie Humphreys <[email protected]> 
>> wrote:
>> 
>> It is well over 50% of spinal cord injury who develop a syrinx, some with in 
>> a month of injury some many years and then others ... never.
>> Bobbie 
>> 
>> "You must fail in order to succeed"
>> 
>>> On Jan 22, 2017, at 8:02 PM, Lori Michaelson <[email protected]> wrote:
>>> 
>>> Yes, I have known for years that 3 to 4% of persons with traumatic spinal 
>>> cord injuries get posttraumatic syndrome syringomyelia and I fell into that 
>>> 3% with severe symptoms whereby I had to quit work.
>>> 
>>> Those "others" are able-bodied people who developed a form of syringomyelia 
>>> called Chiari Malformation. Even though vastly different they have the same 
>>> type of "syrinx."
>>> 
>>> It is similar in that a Chiari Malformation it is an abnormal collection of 
>>> CSF [cerebral spinal fluid] in the spinal cord (syrinx) and is also 
>>> confirmed by cine MRI and causes severe or worsening symptoms.
>>> 
>>> ~Lori
>>> 
>>>> On Fri, Jan 20, 2017 at 10:45 PM, Aaron Mann <[email protected]> wrote:
>>>> More info: "Approximately 3-4% of persons with traumatic SCI develop 
>>>> clinically symptomatic PTS. A larger percentage of persons have clinically 
>>>> silent syrinx cavities diagnosed by imaging techniques."
>>>> 
>>>> http://emedicine.medscape.com/article/322348-overview
>>>> ​
>>> 
>>> 
>>> 
>>> -- 
>>> "Petting, scratching and cuddling a dog could be soothing to the mind and 
>>> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
>>> Koontz
> 

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