Many prayers for you Lori
Nicki From: Lori Michaelson [mailto:[email protected]] Sent: Thursday, February 9, 2017 4:55 PM To: Nichole Rohling Subject: Re: [QUAD-L] ? about Irrigating Catheter Better than that... a long time ago my husband suggested ABD pads because I have a lot of vaginal discharge. I don't have as much anymore but my husband always done the most wonderful, useful ideas and these are one of them that I wear every day that I am up in the chair but these breakdowns (and where they are) are so far up in the crease that I am going to have to stay in bed to keep checking to make sure I am not wet. Further, my live-in caregiver is going away from this Saturday until the next Saturday and my fill in caregiver has not had to deal with this type of breakdown before. And between 1 PM and 6 PM her daughter (age 18) who wants to be a nurse has no experience with loans but my live-in caregiver is addressing these things by keeping contact with my fill in caregiver that I have had since April of 2016. And what we have been doing. This fill-in caregiver has now gotten a new job whereby she is working toward working for a medical supply company instead of having the flexibility of having different patients in the area around the clock so I am looking at a new fill-in caregiver that I can afford and they want so much money for being around-the-clock and just training them is exhausting let alone my safety. But I am done all this before so we will just have to do it again. I am on the phone with Medicare right now waiting to speak to a representative so I have 1 million things to do before my live-in caregiver goes away and I am stuck in bed for my safety for my breakdowns but thank you for your thoughtfulness and advice! ~Lori On Thu, Feb 9, 2017 at 2:13 PM, Nichole Rohling <[email protected]> wrote: Have you tried a panty liner during the day? I use Always panty liners to absorb leakage. Nicki From: Lori Michaelson [mailto:[email protected]] Sent: Wednesday, February 8, 2017 7:06 PM To: Nichole Rohling Subject: Re: [QUAD-L] ? about Irrigating Catheter I wish you the best Nicki! This new urologist of mine is so booked up that I cannot get received your down until June 13 - 4 MONTHS later unless they get a cancellation! Because of the constant urine leaking around my catheter... it has caused skin breakdown. Last summer I was in bed for 2 1/2 months from skin breakdown and now I have started again but in the worst possible place... in between my left labia at my left thigh and in between my right labia and my right thigh... which is where the urine likes to drool. The skin breakdown that began in between my right labia and my right thigh started Friday morning and the one on the left started this morning! We are doing our best with folding 4x4 gauze pads in there during the day when I am up in the chair and it is best to leave them open when in bed overnight and sleeping on my side. Otherwise the gauze pads just add problems. Thoughts are with you! On Wed, Feb 8, 2017 at 4:47 PM, Nichole Rohling <[email protected]> wrote: Thanks Lori, Prayers for you and your procedure. I was able to get in with urologist next Wednesday. Nicki From: Lori Michaelson [mailto:[email protected]] Sent: Wednesday, February 8, 2017 4:30 PM To: Nichole Rohling Subject: Re: [QUAD-L] ? about Irrigating Catheter I know that the urologist gave me a ratio of white vinegar/sterile water or saline but it was too strong and caused bladder pain so I had to lower the quantity of vinegar. I remember now then it was one cup of sterile water to 2 tablespoons of white vinegar that we would make up before hand and then pour them into individual little cups that the home health agency provided to bring the sterile water or saline. When I just went through is a total nightmare. I have now lost my urethra thanks to what that nurse did to me at the end of January 2016. I had urodynamics done yesterday and I am going to have to have a bladder neck closure and a suprapubic catheter. I was fine and dandy when I first moved here but it only takes one insect to damage so much grain (as Elton John stated in his song/tribute to John Lennon called "Empty Garden" or also known as "Hey Hey Johnny"). On Wed, Feb 8, 2017 at 2:25 PM, Nichole Rohling <[email protected]> wrote: I am going to make urology appt but I the meantime I’m going to up irrigation to twice a day instead of just nights. Do you happen to know ratio of vinegar to sterile water? I can google it too. Thanks Nicki From: [email protected] [mailto:[email protected]] Sent: Wednesday, February 8, 2017 1:34 PM To: [email protected]; [email protected] Subject: Re: [QUAD-L] ? about Irrigating Catheter Have you considered that most doctors, nurses and medical staff, have never been cath'ed. Sterile Conditions, sterile water, a teaspoon of white vinegar. Deep Breaths help relax the control muscle and 2% zilocaine is recommended when pain is involved. Best Wishes In a message dated 2/8/2017 11:00:58 A.M. Central Standard Time, [email protected] writes: sterile water. -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
