There's got to be something out there for him. They should speak to a DME provider in their area.
On Sun, Sep 30, 2018 at 6:13 AM Ismael Cavazos <[email protected]> wrote: > Hello guys October 8 is going to be 37 years that I've been a quadriplegic > paralyzed from the neck down and connected to a respirator I was 18 years > old I was 18 days away that I was going to turn 19 when the doctors told my > mother at that time that I was going only survive 72 hours beside before my > accident I was already legally blind but when I was born I was completely > blind after 6 surgeries on my eyes I started seeing a little I started > seeing when I was 11 years old doctors consider me legally blind I could > see a little better than nothing most of my life since I been a > quadriplegic I was in the nursing home 2001 I got out I was scared to get > out because like I said most of my life I was in the nursing home I thought > it wasn't possible for person in my condition to be out from the nursing > home and connected to a respirator I knew it that I did not need to prove > to no one that I was able to do it outside the nursing home that I needed > to prove only to myself it was hard and scary in the beginning with God > help I continued being outside the nursing home and I was the right choice > I did for myself since I been a quadriplegic only one time bed sore and I > was in the nursing home since then I haven't had one until now my body is > 100% better than any quadriplegic that is in the nursing home no rashes no > bed sores at all I used to get more sick when I was in the nursing home I > used to go more often to the hospital when I was in the nursing home when I > was there out of the ear I used to go to the hospital 5 times out of the > year it wasn't one thing was another but I was getting more sick now that > I'm out sometimes I go one time out of the year to the hospital or > sometimes to years passed by and I don't go to the hospital at all I been > blessed many times different ways several times and I've been lucky the > only thing I'm not getting any younger like I said I'm blessed and I am > continually being bless by Jesus let me tell you guys something else on > Friday I met this couple they have a little boy that is 4 years old he is > paralyzed from the neck down and also connected to a respirator's he is > very alert the sad thing about it is not able to talk and also he has a > tooling inside his nose so he can eat his mother and father was telling me > they were trying to get him a wheelchair but according medicate they told > his mother and father medicate doesn't cover his wheelchair because there's > no wheelchair for his age because she's too small that I have to wait until > he gets older so he can get a wheelchair I do not agree on that and mother > and father doesn't know too much about programs out there they don't know > anything about people with disability they got other kids but there are > walking but the different from me and you guys yes we were young when our > accident happened by we had a chance to walk to run to play we know how it > feels to do that this little boy never had a chance to run to plate to > enjoy to be a child that is sad every 1 of us we been blessed different > ways sense are accidents happen some of us we had her mother and father > like him we grew up and some of us we don't have our mother or father > anymore by one way another we got bless by got put us somebody special and > our life to be part of our life to help us and to understand this like I > said we were young and we had a lot of dreams about those dreams went down > the drain when we end up being a quadriplegic whenever going to have a > chance to catch up what we miss we are able to defend ourselves to fight > for our rights and say what hurts or doesn't hurt what we don't like and > what we like some of us been a quadriplegic longer than others now going > back about this little boy she is going to grow up like us his parents not > going to be there when he gets old is not able to talk you not able to say > what hurts or doesn't hurt cannot express herself his feelings that is very > sad is not able to fight for his right if in the future is not able to talk > like he cannot talk right now now in the future if he's able to talk that > will help them a little we had a chance to go to school and we learn how to > read and spell in the future for this little boy if you continue the way is > wet out communicating is going to be very bad in the future brother and > sisters probably not going to be there for him he probably going to end up > in the nursing home like I did in the nursing home is terrible's that's why > I say we been blessed compare to him yes we got problems in life this and > that but this little boy 80% more problems what we have when his mother and > father told me about his condition they put me to think right now his > parents take care of him at home let me ask you this guys do you know if > it's true what medicate and Medicare told his mother and father I don't > agree on that and I don't believe in that there's got to be a wheelchair > for his size for somebody could push him around I've never seen a > wheelchair that small have you guys seen a wheelchair that small I would > like to help this little boy but I don't know where to start any ideas you > guys have will be appreciated thank you and God bless you > > >
