If my husband were still alive or even when I was living with my sister and brother-in-law... I was well taken care of. Ever since I have been alone and have had a home health agency nurse hurt me badly requiring surgery (and having numerous doctors and hospitals hurting me badly over the last 4+ years with a domino effect) my body has fallen into disrepair. And I can't do anything about it because there is nothing I can do own laws like turn back the clock or be a psychic and being able to know what would happen) I simply can't take the ongoing physical pain and then the emotional pain because of it.
Everything quieter and surgery is going downhill. I know my body best and began having the same thing happen to me (the exact same symptoms) that has been happening over the last 40 years accept more frequently after a hospital hurt me after the home health agency nurse hurting me ... having the symptoms (chills) and then taking my temperature (which I knew what the results would be) and having a fever. So that my fever would not go up any higher I took ibuprofen and then calling my urologist but they wanted another urine specimen taken to have a culture & sensitivity which God knows when the results would get back to me (I always get them first via e-mail before my urologist's gets them) and last week it showed what I expected (Proteus Mirabilis) and the only thing that P. Mirabilis is creating a lot of sediment in my urine 2010 are few years before that. I learned from my husband that, looking under a microscope, only chose P. Mirabilis because it covers any bacteria below it that can't be diagnosed. Something medical technologists knows as well as a Chief Medical Technologist (which my husband was) and doctors rarely knows this. When I got the test results last week my urologist's nurse called me saying that Dr. said it showed multi-bacteria but nothing that required an antibiotic which I agreed with last week (not having any symptoms) and life went on as normal (as best as can be with quadriplegics) last week until Sunday night. I then called my urologist Monday morning and that's when he said that he wanted another culture and sensitivity done. I understand this to a certain extent but since it takes so long... I was hoping he would call in an antibiotic because my bladder and flank pain was so terrible. Unbearable for me continuing to this day. Last week the lab got the results back to me in record time (2 days) whereby they can get the results within that time but labs tell patients they can't get results before 3 days (which my husband taught me know those that they can be done within that time frame since he was the one doing that as a chief medical technologist and who ran his own laboratory in a small hospital as he was going to medical school) so they should be available today but have not gotten any results yet as I continue to suffer. It was only 5 months after my urologist at the time diagnosed me with superficial bladder cancer. Coincidence? I don't believe in coincidences. And since that diagnosis... I am required to go to another urologist to have my bladder checked every six months to make sure my bladder does not have any more growths/polyps on my bladder wall. And, since my husband 's death, I began to have Psychogenic Nonepileptic Seizures when under more stress... and the traumatic event of losing my husband so I now need to see a neurologist for a prescription medication because they were convinced they were regular seizures. I finally, last year or before that believed me but I still need to see him. It has never helped because if I am wanting to have a seizure... I do. $$$. Then I did something stupid by asking my primary care physician through the patient portal if she thought of me magnesium supplements (for lower extremity edema) would conflict with any of my prescription medications. She said she had never heard that but that she said it was a while since my blood work had been done so she said she would send a mobile laboratory to come to my home and get my blood to test. I could kill myself for asking HER that and not my pharmacist! So the lab called me yesterday and said they would come out this morning between 9 AM and 11 AM and that I had to fast after midnight. Firstly, if I fast then it will lower my sodium level and I run low on sodium so she will get the results and want me to get to the hospital. That is LAST place for me to be now... if a hospital! With everything going crazy with the coronavirus. Then the laboratory never shows up. And I had drank a bottle of Gatorade so my sodium level would not reflect a false positive. I've been through this before in September and the hospital did nothing for me except called my body with sodium leaving my body so swollen I had to stay in bed for five days. They gave me nothing for an antibiotic when I told them that I have been having the same exact symptoms for a bladder infection. So after a while my caregiver calls the laboratory and they say I was not scheduled for today but for tomorrow despite me talking to them yesterday saying that they would be here this morning. Of course they changed their story. Nothing I can do! I had to start my care much earlier for obvious reasons. I am still having severe letter and flank pain that feels like my bladder and lower back pain (flank pain) are on fire and God knows when that laboratory (a different one who has been testing my urine for several years now) and, again, God knows when the results will get to me or my doctor. I am also having very small wounds that have been going on for several weeks now but it is getting doctored up with good results. I'VE JUST HAD IT!!! I no longer have my mother or my grandparents or my spouse who really really cared for me. On Wed, Jun 10, 2020 at 12:23 PM Furious <[email protected]> wrote: > you're an inspiration Nancy! 29 years c4/5! God bless you with many > more. I like your attitude! > > On Mon, Jun 8, 2020 at 8:22 AM <[email protected]> wrote: > >> Happy n Healthy Anniversary Nan ! May You Continue To Stay Healthy ! >> Best Wishes >> >> In a message dated 6/7/2020 5:26:52 PM Central Standard Time, >> [email protected] writes: >> >> *Today is the of my accident. I am so blessed to have had such a full >> life! * >> >> >> >> *Nan, C5/6 complete.* >> >> >> >> Nancy Gillen >> >> >> -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
