OMG! I just reread this and there are so many typos and terrible grammar... I apologize for this. I am just so tired and frustrated... resulting in not proofreading and sending it not realizing such a great amount of typos, terrible grammar and therefore misunderstandings that my previous e-mail love to all of you.
Thanks in advance for your patience (if you made it through such a lengthy and such an awful e-mail) ~Lori On Wed, Jun 10, 2020 at 3:07 PM Lori Michaelson <[email protected]> wrote: > If my husband were still alive or even when I was living with my sister > and brother-in-law... I was well taken care of. Ever since I have been > alone and have had a home health agency nurse hurt me badly requiring > surgery (and having numerous doctors and hospitals hurting me badly over > the last 4+ years with a domino effect) my body has fallen into disrepair. > And I can't do anything about it because there is nothing I can do own > laws like turn back the clock or be a psychic and being able to know what > would happen) I simply can't take the ongoing physical pain and then the > emotional pain because of it. > > Everything quieter and surgery > > is going downhill. I know my body best and began having the same thing > happen to me (the exact same symptoms) that has been happening over the > last 40 years accept more frequently after a hospital hurt me after the > home health agency nurse hurting me ... having the symptoms (chills) and > then taking my temperature (which I knew what the results would be) and > having a fever. So that my fever would not go up any higher I took > ibuprofen and then calling my urologist but they wanted another urine > specimen taken to have a culture & sensitivity which God knows when the > results would get back to me (I always get them first via e-mail before my > urologist's gets them) and last week it showed what I expected (Proteus > Mirabilis) and the only thing that P. Mirabilis is creating a lot of > sediment in my urine 2010 are few years before that. I learned from my > husband that, looking under a microscope, only chose P. Mirabilis because > it covers any bacteria below it that can't be diagnosed. Something medical > technologists knows as well as a Chief Medical Technologist (which my > husband was) and doctors rarely knows this. When I got the test results > last week my urologist's nurse called me saying that Dr. said it showed > multi-bacteria but nothing that required an antibiotic which I agreed with > last week (not having any symptoms) and life went on as normal (as best as > can be with quadriplegics) last week until Sunday night. I then called my > urologist Monday morning and that's when he said that he wanted another > culture and sensitivity done. I understand this to a certain extent but > since it takes so long... I was hoping he would call in an antibiotic > because my bladder and flank pain was so terrible. Unbearable for me > continuing to this day. > > Last week the lab got the results back to me in record time (2 days) > whereby they can get the results within that time but labs tell patients > they can't get results before 3 days (which my husband taught me know those > that they can be done within that time frame since he was the one doing > that as a chief medical technologist and who ran his own laboratory in a > small hospital as he was going to medical school) so they should be > available today but have not gotten any results yet as I continue to suffer. > > It was only 5 months after my urologist at the time diagnosed me with > superficial bladder cancer. Coincidence? I don't believe in coincidences. > And since that diagnosis... I am required to go to another urologist to > have my bladder checked every six months to make sure my bladder does not > have any more growths/polyps on my bladder wall. And, since my husband 's > death, I began to have Psychogenic Nonepileptic Seizures when under more > stress... and the traumatic event of losing my husband so I now need to see > a neurologist for a prescription medication because they were convinced > they were regular seizures. I finally, last year or before that believed me > but I still need to see him. It has never helped because if I am wanting to > have a seizure... I do. $$$. > > Then I did something stupid by asking my primary care physician through > the patient portal if she thought of me magnesium supplements (for lower > extremity edema) would conflict with any of my prescription medications. > She said she had never heard that but that she said it was a while since my > blood work had been done so she said she would send a mobile laboratory to > come to my home and get my blood to test. I could kill myself for asking > HER that and not my pharmacist! So the lab called me yesterday and said > they would come out this morning between 9 AM and 11 AM and that I had to > fast after midnight. Firstly, if I fast then it will lower my sodium level > and I run low on sodium so she will get the results and want me to get to > the hospital. That is LAST place for me to be now... if a hospital! With > everything going crazy with the coronavirus. > > Then the laboratory never shows up. And I had drank a bottle of Gatorade > so my sodium level would not reflect a false positive. I've been through > this before in September and the hospital did nothing for me except called > my body with sodium leaving my body so swollen I had to stay in bed for > five days. They gave me nothing for an antibiotic when I told them that I > have been having the same exact symptoms for a bladder infection. > > So after a while my caregiver calls the laboratory and they say I was not > scheduled for today but for tomorrow despite me talking to them yesterday > saying that they would be here this morning. Of course they changed their > story. Nothing I can do! I had to start my care much earlier for obvious > reasons. > > I am still having severe letter and flank pain that feels like my bladder > and lower back pain (flank pain) are on fire and God knows when that > laboratory (a different one who has been testing my urine for several years > now) and, again, God knows when the results will get to me or my doctor. > > I am also having very small wounds that have been going on for several > weeks now but it is getting doctored up with good results. > > I'VE JUST HAD IT!!! > > I no longer have my mother or my grandparents or my spouse who really > really cared for me. > > > > > On Wed, Jun 10, 2020 at 12:23 PM Furious <[email protected]> wrote: > >> you're an inspiration Nancy! 29 years c4/5! God bless you with many >> more. I like your attitude! >> >> On Mon, Jun 8, 2020 at 8:22 AM <[email protected]> wrote: >> >>> Happy n Healthy Anniversary Nan ! May You Continue To Stay Healthy ! >>> Best Wishes >>> >>> In a message dated 6/7/2020 5:26:52 PM Central Standard Time, >>> [email protected] writes: >>> >>> *Today is the of my accident. I am so blessed to have had such a full >>> life! * >>> >>> >>> >>> *Nan, C5/6 complete.* >>> >>> >>> >>> Nancy Gillen >>> >>> >>> > > -- > “Petting, scratching, and cuddling a dog could be as soothing to the mind > and heart as deep meditation and almost as good for the soul as prayer.” > ― Dean Koontz > -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
