Nothing worse than waking up in a puddle of your own piss.  I think that
sometimes the catheter gets up against the bladder wall in a funky way and
just doesn't drain well.  I always start simple by changing the catheter.

On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn <[email protected]> wrote:

> Wow, Lori that does sound strange....do you think the catheter is in place
> correctly and the little balloon that holds it in bladder is inflated
> right? I'm a male so not sure if there is a difference with the SP or not.
> We change my catheter about once a month or at 5-6 weeks at longest. You
> have probably already tried a fresh catheter change but if not perhaps that
> could help? Hope you can get it figured out...Us Quads have enough to worry
> about as it is. Dan H.***
>
> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson <
> [email protected]> wrote:
>
>
> When I went to my urologist's office for my January 22nd of this year (as
> expected for my every 6 month appointment with him) and he said that
> everything looked great and instead of seeing him every 6 months I should
> not need to see him for another year. I was going to him every 6 months to
> see him and have him do a cystoscopy to make sure there were no more
> 'growths' or 'polyps' that was found several years ago and was superficial
> bladder cancer. I did not feel bad or expect the following:
>
> Less than 2 months later and me not having any problems... on April 16 in
> the morning I was laying in a bunch of pee. Just out of the blue and
> absolutely no reason for it. And it kept coming and mostly in the evening
> after laying down and we never knew what to expect the following morning.
> For one example, as I was doing my care this morning, I felt the pressure
> of me not urinating through the catheter and, sure enough, it was like a
> fountain in the air.
>
> I made an appointment on April 21st to see my urologist and he was as
> surprised as I was. I have always taken oxybutynin 5mg extended release 3
> times a day. On Wednesday before my appointment at the end of January of
> this year I was doing great (physically for the most part) and had no
> problems with my bladder, spasms or anything else. I have really enjoyed
> this urologist and he is great. Another member of the Quad list has him and
> he likes him too.
>
> He gave me several boxes of Toviaz to try (which I did for a good week)
> but it did not help.
>
> I was the symptomatic of a UTI but they wanted me to take a couple of
> antibiotics for what was in my urine and had been off and on for years.
> This week they said they were going to: antibiotic but never did. Then
> wrote out a script for Myrbetrig (another script for bladder spasms) and
> the co-pay for that was over $300!!!
>
> I asked my insurance what was the most inexpensive bladder spasm
> medications and they said it would be Tolterodine  4 mg extended release
> once a day. My co-pay was around $31 for 30 days. I started it yesterday at
> dinner time.
>
> Last evening  there was some leaking but not like this morning which was
> having it spurt up in the air like a fountain of urine.
>
> I have never experienced this before. I need 2 chux on my bed, a large
> heavy duty paper and one ABD pad that I was going to stop ordering because
> I had always been having large amounts of vaginal discharge but that
> discontinued quite a while ago. Now I need them.
>
> Have any of you with SP catheters experienced this? I am actually stunned
> with this coming on so quickly and continuing.
>
> Thanks!
>
> --
> “Petting, scratching, and cuddling a dog could be as soothing to the mind
> and heart as deep meditation and almost as good for the soul as prayer.”
> ― Dean Koontz
>

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