Greg, so sorry to hear you're going through this. I can't remember if I brought it up before, but have you had a MRI of your injury site done? Looking for possible spurs growing into your spinal cord. Probably 25 years ago a buddy of mine was having issues with his arms and breathing. After looking at over everything they did a MRI of his spine where he had his injury and found that there were bone spurs growing into his spinal cord at the injury site. Apparently, this is something that can occur on some of us.
I will definitely keep you in my prayers and hope that our doctors keep on hunting for what may be going on. Have you reached out to actual rehab centers to try to get their specialists involved? Aaron Mann On Tue, Jan 4, 2022 at 1:20 PM Eric Olson <[email protected]> wrote: > How frustrating! I wish I had answers or even suggestions. When you > first told us about this, I thought it was a heart problem. I'd suggest a > second opinion, but it sounds like you've already done that. I know this > doesn't help but I'm praying for you > > On Mon, Jan 3, 2022 at 6:53 PM Greg <[email protected]> wrote: > >> >> Just spent another three days in the hospital because of my breathing >> problem. I'm having a hard time inhaling without there being heavy >> pressure. And breathing like I just run a marathon. This time they did >> another CAT scan and at least found out my lung blood clots are gone. They >> also did a heart Echo, an ultrasound of my heart and it came out fine. They >> also did a sniff test, and it showed my diaphragm was pretty good. When I >> breathe feels like a rubber band around my chest. Then I start breathing >> very heavy and my shoulders go up and down just cuz it's so hard to >> breathe. It started seven or eight months ago, right after I had an >> ablation of my heart to fix a flutter. I had to be intubated, and right >> when I came out I was breathing like this and they thought I had too much >> CO2. So I was on a respirator for a week or so. But after that I still have >> the breathing issues. Since then I've had to be on a respirator at night >> just to help me breathe easy enough to sleep. >> >> I've been to at least three lung doctors, a couple different heart >> doctors, the neurologist, a blood doctor, the quad doctor. No one can >> figure it out. >> >> I thought maybe it was just getting older, muscles and lungs getting old, >> and my spine is curving a bit, but it happened so fast right after the >> heart ablation. >> >> I am scheduled for one more test, a stress test on my heart, I just hope >> they can find something. I can't keep breathing like this it's constantly >> hard to breathe and then gets really hard times. Like I've run a marathon >> with someone sitting on my chest. >> >> About 3 years ago I had a pleural effusion, where fluid fills up between >> your lungs. It kept coming back and I wood drain about a liter and a half a >> fluid once or twice a week. But I had a procedure to fix it. I keep saying >> that's what it feels like, but they all keep saying there's no fluid >> anymore in there. >> >> I get so exhausted just typing a few words, haven't been able to go out >> for almost 3 years. Just too tired and breathe too hard. >> >> Any ideas, >> thanks Greg >> >>
