Re: [CMLHope] Re: Not getting any mail

2019-09-18 Thread myvety2k via CMLHope 
Sherri I'm so glad that you have CML in check after 17 years.  I started STI571 
(Gleevec) the first week in Jan. 2000 and still going strong.  I was in a study 
with 200 other people in the United States before it was approved by the FDA. I 
was the only one from Indiana and the rest were from the Chicago land area.   
Hope to keep it that way.


-Original Message-
From: sherri swanson 
To: cmlhope 
Sent: Tue, Sep 17, 2019 3:35 pm
Subject: Re: [CMLHope] Re: Not getting any mail

Hi Jeanie, 

I'm still here too. Just been doing things and we, my husband and the dog moved 
this year. I'm getting to old for that moving stuff.  

My Gleevec is keeping my CML in check and has been for about 17 years. WOW, 
that's a long time. 

Hope everyone is doing well and has enjoyed the summer. 

Sherri 
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com 
 wrote:

Hi Jeanie,
I received my CML medicine from Acaria in the past with no issues. I think many 
insurance providers are requiring that patients go through mail order 
pharmacies like Acaria to save money. 

On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeaniefreeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
To view this discussion on the web visit 
https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
To view this discussion on the web visit 
https://groups.google.com/d/msgid/cmlhope/CAFyQvgJ1r-SCETVvH08h%3Dt%2BvW-rDmV53MVTPKS1eQmKeskpRtQ%40mail.gmail.com.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
To view this discussion on the web visit 
https://groups.google.com/d/msgid/cmlhope/168236363.3259899.1568827900935%40mail.yahoo.com.

Re: [CMLHope] Re: Not getting any mail

2019-09-17 Thread sherri swanson 
Hi Jeanie,

I'm still here too. Just been doing things and we, my husband and the dog
moved this year. I'm getting to old for that moving stuff.

My Gleevec is keeping my CML in check and has been for about 17 years. WOW,
that's a long time.

Hope everyone is doing well and has enjoyed the summer.

Sherri
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM kevin.l.willi...@gmail.com <
kevin.l.willi...@gmail.com> wrote:

> Hi Jeanie,
>
> I received my CML medicine from Acaria in the past with no issues. I think
> many insurance providers are requiring that patients go through mail order
> pharmacies like Acaria to save money.
>
> On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
>>
>> Hello
>> I am not receiving any mail from group. Has this group shut down.
>> Anyway Igor a letter in the mail saying AcariaHealth would handle my
>> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone
>> else heard this. Hope everyone is great.
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> To view this discussion on the web visit
> https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com
> 
> .
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
To view this discussion on the web visit 
https://groups.google.com/d/msgid/cmlhope/CAFyQvgJ1r-SCETVvH08h%3Dt%2BvW-rDmV53MVTPKS1eQmKeskpRtQ%40mail.gmail.com.

[CMLHope] Re: Not getting any mail

2019-09-17 Thread kevin.l.willi...@gmail.com 
Hi Jeanie,

I received my CML medicine from Acaria in the past with no issues. I think 
many insurance providers are requiring that patients go through mail order 
pharmacies like Acaria to save money. 

On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
>
> Hello
> I am not receiving any mail from group. Has this group shut down.  
> Anyway Igor a letter in the mail saying AcariaHealth would handle my 
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone 
> else heard this. Hope everyone is great.  
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian 
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
To view this discussion on the web visit 
https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com.