Sherri I'm so glad that you have CML in check after 17 years. I started STI571 (Gleevec) the first week in Jan. 2000 and still going strong. I was in a study with 200 other people in the United States before it was approved by the FDA. I was the only one from Indiana and the rest were from the Chicago land area. Hope to keep it that way.
-----Original Message----- From: sherri swanson <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Sep 17, 2019 3:35 pm Subject: Re: [CMLHope] Re: Not getting any mail Hi Jeanie, I'm still here too. Just been doing things and we, my husband and the dog moved this year. I'm getting to old for that moving stuff. My Gleevec is keeping my CML in check and has been for about 17 years. WOW, that's a long time. Hope everyone is doing well and has enjoyed the summer. Sherri Northern Illinois On Tue, Sep 17, 2019 at 8:49 AM [email protected] <[email protected]> wrote: Hi Jeanie, I received my CML medicine from Acaria in the past with no issues. I think many insurance providers are requiring that patients go through mail order pharmacies like Acaria to save money. On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/88b537e0-676d-483d-a048-ac4d299bde43%40googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/CAFyQvgJ1r-SCETVvH08h%3Dt%2BvW-rDmV53MVTPKS1eQmKeskpRtQ%40mail.gmail.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/168236363.3259899.1568827900935%40mail.yahoo.com.
