Re: [CMLHope] Thyroid dosage?

[Marty Gartenberg]

It took about a month, but after a week or two it came back and lasted for
another few weeks. It was very difficult to explain, the tingling was in my
pinky and the inside side that touched my ring finger on it's side. But it
never came back again...

18's,

Marty

On Tue, Jul 24, 2018 at 1:07 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thanks Marty and everyone. How long did it take for tingling to go away?
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Jul 24, 2018, at 9:50 AM, Marty Gartenberg  wrote:
>
> Hi Jeanie and Joyce,
>
> First to Jeanie: I am very sorry that you are having this problem but you
> should know that this will be corrected very soon. And the fact that your
> having all of these problems especially about your swaeting and the
> temporary loss or tingling of one of your fingers. I am "happy" that you
> brought this up because that is also what happened to me as well. In my
> case it was my pinky on my right hand, but it will go away.
>
> Now I did ask you if your dose may be incorrect because if in fact it was
> 50 mg  and not micrograms then you would have been in the hospital for sure
> and who knows what would have happened to you. You see that is what is GOOD
> about this CMLhope site. And you know why, it is because other people care
> about each other.
>
> So now let's bring in Joyce: So miss Joyce I need you to stand up and very
> gently pat yourself on the back, and if you want to curtsy a little bit
> then be my guest.
>
> Oh please don't let me forget those cherries for Jeanie as well.
>
> 18's,
>
> Marty
>
> On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Thank you Joyce
>> Yes I was wrong about dosage. It was 0.05mg
>> I took a whole 5o this morning but I’m sweating really bAd and shaking.
>> So I’m going back to half.
>> I woke up a few months ago and my right finger was numb.
>> Anyone have that?
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich  wrote:
>>
>> Jeanie,
>> I would take the dosage your Dr advised.  My husband is taking 150.  He
>> has been taking it so long that we can’t really remember how often he did
>> blood tests when he first started.  I think it was every 3 months.  Now he
>> gets tested every 6 months.  That, evidently, is what Medicare will pay for
>> and deems necessary.  I takes a while for your body to build up the
>>  thyroid.  I think you should take the whole dosage.  It may even be
>> adjusted higher as you go along and they find the right amount that you
>> need.  50 sounds like a very low dose.  Don’t think you should have any
>> problems with it.  Hope you feel better soon.  My husband never noticed any
>> difference in how he felt.  He was diagnosed before he had any symptoms, I
>> guess.
>>  God bless and keep you,
>> Joyce in Southern Illinois
>>
>>
>> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> My dr gave me 50 mg but I am taking half. Should I take the full dose?
>> 18’s
>> How often to get tested?
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  wrote:
>>
>> Great drug! I have been taking it for many, many years. What dose is he
>> on?
>>
>> 18's,
>>
>> Marty
>>
>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich  wrote:
>>
>>> Jeanie,
>>> My husband has had hypothyroidism for years…..before he got CML.  It
>>> never caused him any problems.  It was diagnosed at a regular office visit
>>> with a blood test.  He takes levothyroxin and has regular blood tests.
>>>
>>> Joyce in Southern Illinois
>>>
>>>
>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>> Anyone have a thyroid problem?
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015
>>> New 

Re: [CMLHope] Thyroid dosage?

['Jeanie' via CMLHope]

Thanks Marty and everyone. How long did it take for tingling to go away?

My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Jul 24, 2018, at 9:50 AM, Marty Gartenberg  wrote:
> 
> Hi Jeanie and Joyce,
> 
> First to Jeanie: I am very sorry that you are having this problem but you 
> should know that this will be corrected very soon. And the fact that your 
> having all of these problems especially about your swaeting and the temporary 
> loss or tingling of one of your fingers. I am "happy" that you brought this 
> up because that is also what happened to me as well. In my case it was my 
> pinky on my right hand, but it will go away.
> 
> Now I did ask you if your dose may be incorrect because if in fact it was 50 
> mg  and not micrograms then you would have been in the hospital for sure and 
> who knows what would have happened to you. You see that is what is GOOD about 
> this CMLhope site. And you know why, it is because other people care about 
> each other.
> 
> So now let's bring in Joyce: So miss Joyce I need you to stand up and very 
> gently pat yourself on the back, and if you want to curtsy a little bit then 
> be my guest.
> 
> Oh please don't let me forget those cherries for Jeanie as well.
> 
> 18's,
> 
> Marty 
> 
>> On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope 
>>  wrote:
>> Thank you Joyce 
>> Yes I was wrong about dosage. It was 0.05mg
>> I took a whole 5o this morning but I’m sweating really bAd and shaking.   
>> So I’m going back to half. 
>> I woke up a few months ago and my right finger was numb.  
>> Anyone have that?
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> 
>> 0 CBL. ABL
>> 
>>> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich  wrote:
>>> 
>>> Jeanie,
>>> I would take the dosage your Dr advised.  My husband is taking 150.  He has 
>>> been taking it so long that we can’t really remember how often he did blood 
>>> tests when he first started.  I think it was every 3 months.  Now he gets 
>>> tested every 6 months.  That, evidently, is what Medicare will pay for and 
>>> deems necessary.  I takes a while for your body to build up the  thyroid.  
>>> I think you should take the whole dosage.  It may even be adjusted higher 
>>> as you go along and they find the right amount that you need.  50 sounds 
>>> like a very low dose.  Don’t think you should have any problems with it.  
>>> Hope you feel better soon.  My husband never noticed any difference in how 
>>> he felt.  He was diagnosed before he had any symptoms, I guess.
>>>  God bless and keep you,
>>> Joyce in Southern Illinois
>>> 
>>> 
 On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope 
  wrote:
 
 
 My dr gave me 50 mg but I am taking half. Should I take the full dose?
 18’s
 How often to get tested?
 My Motto:
 Faith and Pills
 With Love
 Jeanie
 free
 Dx 1/2004 CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna 9/2009
 Started Sprycel 11/2009
 Started Ponatinib 1/ 2015
 New Doctor--Dr Martine Extermann
 Moffitt Cancer  center sept 2017
 Dr Balducci retired 
 
 0 CBL. ABL
 
> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  wrote:
> 
> Great drug! I have been taking it for many, many years. What dose is he 
> on? 
> 
> 18's,
> 
> Marty
> 
>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich  wrote:
>> Jeanie,
>> My husband has had hypothyroidism for years…..before he got CML.  It 
>> never caused him any problems.  It was diagnosed at a regular office 
>> visit with a blood test.  He takes levothyroxin and has regular blood 
>> tests.
>> 
>> Joyce in Southern Illinois
>> 
>> 
>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope 
>>>  wrote:
>>> 
>>> Anyone have a thyroid problem?
>>> 
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015
>>> New Doctor--Dr Martine Extermann
>>> Moffitt Cancer  center sept 2017
>>> Dr Balducci retired 
>>> 
>>> 0 CBL. ABL
>>> 
 On Jul 15, 2018, at 12:44 PM, Marty Gartenberg  
 wrote:
 
 Okay 

Re: [CMLHope] Thyroid dosage?

[Marty Gartenberg]

Hi Jeanie and Joyce,

First to Jeanie: I am very sorry that you are having this problem but you
should know that this will be corrected very soon. And the fact that your
having all of these problems especially about your swaeting and the
temporary loss or tingling of one of your fingers. I am "happy" that you
brought this up because that is also what happened to me as well. In my
case it was my pinky on my right hand, but it will go away.

Now I did ask you if your dose may be incorrect because if in fact it was
50 mg  and not micrograms then you would have been in the hospital for sure
and who knows what would have happened to you. You see that is what is GOOD
about this CMLhope site. And you know why, it is because other people care
about each other.

So now let's bring in Joyce: So miss Joyce I need you to stand up and very
gently pat yourself on the back, and if you want to curtsy a little bit
then be my guest.

Oh please don't let me forget those cherries for Jeanie as well.

18's,

Marty

On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thank you Joyce
> Yes I was wrong about dosage. It was 0.05mg
> I took a whole 5o this morning but I’m sweating really bAd and shaking.
> So I’m going back to half.
> I woke up a few months ago and my right finger was numb.
> Anyone have that?
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
>
> 0 CBL. ABL
>
> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich  wrote:
>
> Jeanie,
> I would take the dosage your Dr advised.  My husband is taking 150.  He
> has been taking it so long that we can’t really remember how often he did
> blood tests when he first started.  I think it was every 3 months.  Now he
> gets tested every 6 months.  That, evidently, is what Medicare will pay for
> and deems necessary.  I takes a while for your body to build up the
>  thyroid.  I think you should take the whole dosage.  It may even be
> adjusted higher as you go along and they find the right amount that you
> need.  50 sounds like a very low dose.  Don’t think you should have any
> problems with it.  Hope you feel better soon.  My husband never noticed any
> difference in how he felt.  He was diagnosed before he had any symptoms, I
> guess.
>  God bless and keep you,
> Joyce in Southern Illinois
>
>
> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> My dr gave me 50 mg but I am taking half. Should I take the full dose?
> 18’s
> How often to get tested?
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
>
> 0 CBL. ABL
>
> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  wrote:
>
> Great drug! I have been taking it for many, many years. What dose is he
> on?
>
> 18's,
>
> Marty
>
> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich  wrote:
>
>> Jeanie,
>> My husband has had hypothyroidism for years…..before he got CML.  It
>> never caused him any problems.  It was diagnosed at a regular office visit
>> with a blood test.  He takes levothyroxin and has regular blood tests.
>>
>> Joyce in Southern Illinois
>>
>>
>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>> Anyone have a thyroid problem?
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg  wrote:
>>
>> Okay Jeanie,
>>
>> Since there is a lot to talk about I will do it between your lines.
>>
>> Hi
>> That’s cute
>> When I first started dating my hubby I was 16. When we went to leave I
>> hugged and kissed my mom and dad goodbye. He told me later he had never
>> seen that before.
>>
>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE
>> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG
>> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN
>> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW
>> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM.
>>
>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF
>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED
>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER
>> FORGET THEM

Re: [CMLHope] Thyroid dosage?

['Jeanie' via CMLHope]

Thank you Joyce 
Yes I was wrong about dosage. It was 0.05mg
I took a whole 5o this morning but I’m sweating really bAd and shaking.   
So I’m going back to half. 
I woke up a few months ago and my right finger was numb.  
Anyone have that?

My Motto:
Faith and Pills
With Love
Jeanie
free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 

0 CBL. ABL

> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich  wrote:
> 
> Jeanie,
> I would take the dosage your Dr advised.  My husband is taking 150.  He has 
> been taking it so long that we can’t really remember how often he did blood 
> tests when he first started.  I think it was every 3 months.  Now he gets 
> tested every 6 months.  That, evidently, is what Medicare will pay for and 
> deems necessary.  I takes a while for your body to build up the  thyroid.  I 
> think you should take the whole dosage.  It may even be adjusted higher as 
> you go along and they find the right amount that you need.  50 sounds like a 
> very low dose.  Don’t think you should have any problems with it.  Hope you 
> feel better soon.  My husband never noticed any difference in how he felt.  
> He was diagnosed before he had any symptoms, I guess.
>  God bless and keep you,
> Joyce in Southern Illinois
> 
> 
>> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope  
>> wrote:
>> 
>> 
>> My dr gave me 50 mg but I am taking half. Should I take the full dose?
>> 18’s
>> How often to get tested?
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> 
>> 0 CBL. ABL
>> 
>>> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  wrote:
>>> 
>>> Great drug! I have been taking it for many, many years. What dose is he on? 
>>> 
>>> 18's,
>>> 
>>> Marty
>>> 
 On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich  wrote:
 Jeanie,
 My husband has had hypothyroidism for years…..before he got CML.  It never 
 caused him any problems.  It was diagnosed at a regular office visit with 
 a blood test.  He takes levothyroxin and has regular blood tests.
 
 Joyce in Southern Illinois
 
 
> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope 
>  wrote:
> 
> Anyone have a thyroid problem?
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> 
> 0 CBL. ABL
> 
>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg  wrote:
>> 
>> Okay Jeanie,
>> 
>> Since there is a lot to talk about I will do it between your lines.
>> 
>> Hi
>> That’s cute
>> When I first started dating my hubby I was 16. When we went to leave I 
>> hugged and kissed my mom and dad goodbye. He told me later he had never 
>> seen that before.
>> 
>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM 
>> THE WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE 
>> WOULD HUG AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST 
>> HUG ME THEN KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. 
>> DO YOU KNOW WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO 
>> FORGET HIM. 
>> 
>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF 
>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED 
>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER 
>> FORGET THEM
>> 
>> His mom and dad never hugged or kissed him.  It was just the way we 
>> were. 
>> Kiss goodbye and kiss hello. 
>> 
>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, 
>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE 
>> ON THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE 
>> 
>> I THINK THAT HE JUST NEEDED A KNIPPLE. 
>>   
>> Same way with my kids. I tell them a hug is better than a pill. 
>> How are you today?
>> 
>> HEY JEANIE, KINPPLES FOR EVERY ONE. 
>> 
>> I’m waiting on my daughter as she will take me to a late lunch. 
>> I find my appetite not as good as it used to be. How bout you?
>> 
>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T 
>> HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE 
>> DO. A WHOLE 

Re: [CMLHope] Thyroid dosage?

[Joyce Mesnarich]

Jeanie,
I would take the dosage your Dr advised.  My husband is taking 150.  He has 
been taking it so long that we can’t really remember how often he did blood 
tests when he first started.  I think it was every 3 months.  Now he gets 
tested every 6 months.  That, evidently, is what Medicare will pay for and 
deems necessary.  I takes a while for your body to build up the  thyroid.  I 
think you should take the whole dosage.  It may even be adjusted higher as you 
go along and they find the right amount that you need.  50 sounds like a very 
low dose.  Don’t think you should have any problems with it.  Hope you feel 
better soon.  My husband never noticed any difference in how he felt.  He was 
diagnosed before he had any symptoms, I guess.
 God bless and keep you,
Joyce in Southern Illinois


> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope  
> wrote:
> 
> 
> My dr gave me 50 mg but I am taking half. Should I take the full dose?
> 18’s
> How often to get tested?
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> 
> 0 CBL. ABL
> 
> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  > wrote:
> 
>> Great drug! I have been taking it for many, many years. What dose is he on? 
>> 
>> 18's,
>> 
>> Marty
>> 
>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich > > wrote:
>> Jeanie,
>> My husband has had hypothyroidism for years…..before he got CML.  It never 
>> caused him any problems.  It was diagnosed at a regular office visit with a 
>> blood test.  He takes levothyroxin and has regular blood tests.
>> 
>> Joyce in Southern Illinois
>> 
>> 
>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope 
>>> mailto:cmlhope@googlegroups.com>> wrote:
>>> 
>>> Anyone have a thyroid problem?
>>> 
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015
>>> New Doctor--Dr Martine Extermann
>>> Moffitt Cancer  center sept 2017
>>> Dr Balducci retired 
>>> 
>>> 0 CBL. ABL
>>> 
>>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg >> > wrote:
>>> 
 Okay Jeanie,
 
 Since there is a lot to talk about I will do it between your lines.
 
 Hi
 That’s cute
 When I first started dating my hubby I was 16. When we went to leave I 
 hugged and kissed my mom and dad goodbye. He told me later he had never 
 seen that before.
 
 OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE 
 WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG 
 AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN 
 KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW 
 WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. 
 
 HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF 
 TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED 
 LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER 
 FORGET THEM
 
 His mom and dad never hugged or kissed him.  It was just the way we were. 
 Kiss goodbye and kiss hello. 
 
 BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, 
 SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON 
 THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE 
 
 I THINK THAT HE JUST NEEDED A KNIPPLE. 
   
 Same way with my kids. I tell them a hug is better than a pill. 
 How are you today?
 
 HEY JEANIE, KINPPLES FOR EVERY ONE. 
 
 I’m waiting on my daughter as she will take me to a late lunch. 
 I find my appetite not as good as it used to be. How bout you?
 
 BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T 
 HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. 
 A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME...
 
 I loved Millie’s cooking and recipes.  I sure do miss her.  
 She fought hard. 
 I remember when she started losing the use of her arms she said she didn’t 
 know what she would do if she couldn’t do her sewing and etc. 
 though I never met her I felt I knew her all my life. More later——
 
 THAT'S WHY I CALLED HER MOMMY LOTTIE.
 
 And she knew what 18's meant.
 
 So 18's,
 
 Marty, and a Knipple to you.
 
 
 
 
 On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope 
 mailto:cmlhope@googlegroups.com>> wrote:
 Hi
 That’s cute
 When I first started dating 

Re: [CMLHope] Thyroid dosage?

[Marty Gartenberg]

Jeanie,

I think that your getting
micrograms verses milligrams mixed up???

18's,

Marty

On Thu, Jul 19, 2018 at 2:29 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> My dr gave me 50 mg but I am taking half. Should I take the full dose?
> 18’s
> How often to get tested?
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
>
> 0 CBL. ABL
>
> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg  wrote:
>
> Great drug! I have been taking it for many, many years. What dose is he
> on?
>
> 18's,
>
> Marty
>
> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich  wrote:
>
>> Jeanie,
>> My husband has had hypothyroidism for years…..before he got CML.  It
>> never caused him any problems.  It was diagnosed at a regular office visit
>> with a blood test.  He takes levothyroxin and has regular blood tests.
>>
>> Joyce in Southern Illinois
>>
>>
>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>> Anyone have a thyroid problem?
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg  wrote:
>>
>> Okay Jeanie,
>>
>> Since there is a lot to talk about I will do it between your lines.
>>
>> Hi
>> That’s cute
>> When I first started dating my hubby I was 16. When we went to leave I
>> hugged and kissed my mom and dad goodbye. He told me later he had never
>> seen that before.
>>
>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE
>> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG
>> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN
>> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW
>> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM.
>>
>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF
>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED
>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER
>> FORGET THEM
>>
>> His mom and dad never hugged or kissed him.  It was just the way we were.
>> Kiss goodbye and kiss hello.
>>
>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE,
>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON
>> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE
>>
>> I THINK THAT HE JUST NEEDED A KNIPPLE.
>>
>> Same way with my kids. I tell them a hug is better than a pill.
>> How are you today?
>>
>> HEY JEANIE, KINPPLES FOR EVERY ONE. 
>>
>> I’m waiting on my daughter as she will take me to a late lunch.
>> I find my appetite not as good as it used to be. How bout you?
>>
>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T
>> HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO.
>> A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME...
>>
>> I loved Millie’s cooking and recipes.  I sure do miss her.
>> She fought hard.
>> I remember when she started losing the use of her arms she said she
>> didn’t know what she would do if she couldn’t do her sewing and etc.
>> though I never met her I felt I knew her all my life. More later——
>>
>> THAT'S WHY I CALLED HER MOMMY LOTTIE.
>>
>> And she knew what 18's meant.
>>
>> So 18's,
>>
>> Marty, and a Knipple to you.
>>
>>
>>
>>
>> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Hi
>>> That’s cute
>>> When I first started dating my hubby I was 16. When we went to leave I
>>> hugged and kissed my mom and dad goodbye. He told me later he had never
>>> seen that before.  His mom and dad never hugged or kissed him.  It was just
>>> the way we were.
>>> Kiss goodbye and kiss hello.
>>> Same way with my kids. I tell them a hug is better than a pill.
>>> How are you today?
>>> I’m waiting on my daughter as she will take me to a late lunch.
>>> I find my appetite not as good as it used to be. How bout you?
>>> I loved Millie’s cooking and recipes.  I sure do miss her.
>>> She fought hard.
>>> I remember when she started losing the use of her arms she said she
>>> didn’t know what she would do if she couldn’t do her sewing and etc.
>>> though I never met her I felt I knew her all my life. More later——
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> free
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015
>>> New Doctor--Dr Martine Extermann
>>>